Barri Leiner Grant was the caretaker for her dad. This is her story and she is RESILIENT A.F.

 

Buy the books: https://theglobalresilienceproject.com/books/

Griefy Gals on TikTok: https://www.tiktok.com/@griefygals 

About the Guest:

Barri Leiner Grant is a well-respected grief specialist. author and founder of The Memory Circle: for those learning to live with loss. As coach, educator and advocate, she holds transformative gatherings and workshops to explore grief tending tools and techniques that foster community, hope and healing.  She is a recovering journalist with stints at The Chicago Tribune and Chicago Magazine. Her work has been featured in The Washington Post, Psychology Today, Maria Shriver’s Sunday Paper among others. Her popular Substack, Permission Granted, shares more of her personal essays and looks at life and loss through a modern lens. She honors her Dad today who died in January after living with memory loss and Alzheimer’s for a decade. 

Links

https://barri.substack.com/

http://www.thememorycircle.com/

⚠️ Content Note: Some episodes may contain themes that could be distressing. Please take care of yourself while listening, and don’t hesitate to seek support from a mental health professional if needed.

About the Hosts: 

Blair Kaplan Venables is a British Columbia-based grief and resilience expert and coach, motivational speaker and the Founder of The Global Resilience Project. Her expertise has been featured on media platforms like Forbes, TEDx, CBC Radio, Entrepreneur, and Thrive Global. She is named the Top Grief and Resilience Expert of the Year 2024 by IAOTP. USA Today listed Blair as one of the top 10 conscious female leaders to watch and she empowers others to be resilient from stages around the world. 'MyStory,’ which is a television show available on Amazon Prime Video, Apple TV+ and Google Play, showcases Blair's life story. She is the host of the Radical Resilience podcast and specializes in helping people strengthen their resilience muscle using scientifically proven methods and guides grieving high performers with her Navigating Grief Framework. The Global Resilience Project’s award-winning book series are international bestsellers, and her fourth book, RESILIENT A.F.: Stories of Resilience Vol 2, will be published in January 2025. In her free time, you can find Blair writing, in nature, travelling the world and helping people to strengthen their resilience muscles. 

Links:

https://www.blairkaplan.ca/

https://theglobalresilienceproject.com

https://www.linkedin.com/in/blairdkaplan 

https://www.facebook.com/blair.kaplan 

https://www.facebook.com/BlairKaplanCommunications  

https://www.instagram.com/globalresiliencecommunity

https://www.instagram.com/blairfromblairland/

https://www.facebook.com/globalresiliencecommunity  

https://www.linkedin.com/company/the-global-resilience-project 

blair@blairkaplan.ca 


Alana Kaplan is a compassionate mental health professional based in Winnipeg, Manitoba, Canada. She works in the mental health field, and is a co-host of the Resilient A.F.  podcast. Fueled by advocacy, Alana is known for standing up and speaking out for others. Passionate about de-stigmatizing and normalizing mental health, Alana brings her experience to The Global Resilience Project’s team, navigating the role one’s mental health plays in telling their story.

Engaging in self-care and growth keeps her going, and her love for reading, travel, and personal relationships helps foster that. When she’s not working, Alana can often be found on walks, working on a crossword puzzle, or playing with any animal she sees.

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Transcript
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The one thing that I'm really sad about is that people did say,

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you can't speak at her funeral. Like it'll be way

Speaker:

too much. And I'm so sad about that. I've written the

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eulogy that I would have given and shared it and

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published it. And, you know, I've tried to

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sort of recreate and reconstruct what I'm very sad

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about. And yeah, I just think the way that

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the world met me at that moment was it wasn't even that

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the world was grief illiterate. It was just unspoken.

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It was completely unspoken. And you went on with your life.

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My stepfather went back to work and so we took his lead and my sister

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got on an airplane and she's five years younger than me, poor thing.

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And I went back to running a public relations firm and

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fashion shows during fashion week. I mean, now that I look at it, it's just

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so sad to me. I have a lot of empathy and compassion for little

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Barry. Welcome back to another episode of

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Resilient AF with Blair and Alana. But pause the Alana

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and bring in Barry. Oh my gosh, Barry.

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She's my unofficial mentor in the professional grief space.

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The moment I met her, I fell in love. We have a lot of

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similarities with our career paths. I love her

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vibe. She's one of the most stylish people and I got to meet her in

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person and I can't wait to see her again in person coming up. But

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she is a well respected grief specialist, author and founder

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of the Memory Circle for those learning to live with loss.

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As a coach, educator and advocate, she holds transformative

Speaker:

gatherings and workshops to explore grief tending tools

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and techniques that foster community hope and healing.

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She's a recovering journalist with stints at the Chicago Tribune.

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Tribune, Tribune, Tribune, Tribune. That's so Canadian of me,

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the Chicago Tribune and the and Chicago Magazine. Her work's

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been featured in the Washington Post, Psychology Today, Maria

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Shriver's Sunday paper, amongst others. Her popular

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substack Permission Granted shares more of her personal

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essays and looks at life and loss through a modern

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lens. Her writing is amazing. Go follow her. Her links are below.

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She honors her dad today who died in January after living with memory

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loss and Alzheimer's for a decade.

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Am so honored that we have shared her story in Resilient AF

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Stories of Resilience Volume 2 and she's going to be in our

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forthcoming book. Well, by the time you listen to this, maybe this is already.

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The book's already out. But Resilient AF Skin Deep Stories.

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So welcome to the show. Barry, I'm so glad

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to be here. It's so much fun and also such

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an honor. I. I think collaboration is

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the best part of our work in the world and you make that

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so effortless. Oh, well, thank you. I mean, I really do like,

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believe humans are meant to heal as community.

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And it's so. Grief is so individualized and it

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can be very isolating. So I believe as a griever, we should

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heal together. But also as a grief and resilience expert,

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I believe in lifting while I climb. And, you know, the more

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people that we can help, the better. Because especially now, it's

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so heavy out there. It sure is. It sure is. And

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I don't really want to do it alone. I learned that lesson

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grieving. And I lost my mom. Suddenly I was

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lots of things. She knew about me. I was a publicist.

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I then later was a journalist. She

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knew all about my writing and all about all of that. And I think

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the story that I told myself back then was she'd be good and pissed if

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I define myself in any way by her death.

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And it did define me. And it took me a really

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long time to realize that

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I wanted her to continue to know me, to be proud of

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me, to have that connective tissue. And so

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with every, like, motherless daughter that I would meet along the way

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or griever, it felt like it was tapping,

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but I wasn't answering. I was a little

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afraid. And I'm so glad I

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made the break. So in 93,

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your mom passed away. First of all, what's your mom's name?

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Ellen. You know, I always ask that. I know. And I've started

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doing it because of you, because I think 1. People always

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use the past tense like her name was. It's like, actually, no, it's still her

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name. And people light up when you ask them. Them?

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Yeah, I mean, one of my favorite practices, which I've shared with you,

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is that I'll often order my takeout or

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a coffee. I giggle when I order bubble tea

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because it's so not Ellen. But I use her name when they

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say, you know, name for the order. And hearing it ring out, you

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know, we. We need to continue to talk about them and bring them into our

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everyday conversations. It. It keeps her alive

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and. And it really is so much fun. It's an easy thing and an

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easy grief tending tool. And again, I do that because of you. And

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I only just started and the first time I did it With Sharon,

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the person maybe have never heard the name Sharon before. And they spelled it, like,

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completely like S H E R E N. I was like, that's unique. And they

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yelled out Sharon. And I was like, oh, that's so cool. And then

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on the way to Winnipeg for the high holidays, I did

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Len. Like, my dad's Leonard. But I was like, I'll just do Len. And it

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was just fun. And I'm like, this is when I remember to do it. If

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I go in person at Starbucks or a coffee shop, not only only do I,

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like, do it, but I always think of you because I'm doing it because of

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you. And it is really nice. And I think it's a really beautiful.

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A beautiful way to feel the presence of those who are

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gone. And ritual is the way that I have learned over time

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to connect to my mom, to carry her

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memory forward. And now figuring out what that looks like for my

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dad. It was like, you know, pumpkin spice day on my

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dad's birthday. And so it was super fun. It was the first time

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I had ever done it in my dad's name. His name is Neil. And it

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was. It was really fun and funny and

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everything else about, like, our. Our gathering was

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kind of crap. We were. We were. We were like, we can't

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eat there anymore. Like, the food isn't good if we're not with dad. Like, a

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lot of things that we did with him, we felt like it was like some

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kind of a sign for my dad to be like, yeah, don't go back to

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all those spots without me. So,

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yeah. And so I know you've recently lost your dad. You lost your mom

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in 93. Let's talk a bit about Ellen. Tell us about Ellen,

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what your life was like at that time when you lost her. I

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was in my late 20s and

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she was healthy, 50. Took

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the day off, called us all. We were all in our places, as I

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always say. My. I was tucked into a PR agency that I

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started that she knew all about. She had just moved my sister into

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her very first job, an apartment in Denver. She was

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giddy that she had scalped us open

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golf tickets for my stepfather. She was, like, so excited. She thought it was,

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like, breaking rules and nearly illegal. And.

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And she took the day off, and she didn't go to the

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normal place where we usually go to the beach, which was like a

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club where she played, like, Scrabble. Not a fancy place, but, like,

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everybody in New Jersey sort of has a place where you hang your towel and

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your swimsuit and A locker and whatever. And she

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didn't go there that day. She went to the public beach, which is called Sandy

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Hook. It's a beautiful national. And

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she fell asleep in her beach chair. She had an aneurysm. And

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we only found out because the sun set on this

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day and a couple was there and knew that they

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were about to leave her alone and thought she had just slept. And

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so we're tapping her on the shoulder and couldn't wake her. The woman happened

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to be a nurse, which is incredible. But because it was all before

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cell phones, you know, they had to find a payphone and 9, 1 1.

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And she was very much gone by the.

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And we knew she wanted her organs

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donated. And so they waited until

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my sister and I got there to sort of make the decision. And

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all of our goodbyes. Goodbyes that I would have changed

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entirely. Knowing what I know now was so shocking. It was so

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traumatic. And nobody really

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asked if we needed to talk to anybody.

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Nobody called it sad,

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overwhelming. Like, I just think, what the hell were the grown ups doing?

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Like, and they were grown ups. People treated me like I was one too.

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I had just lost the most important person,

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most unbelievable woman on the

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planet. I don't know where, you

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know, now I look back at it and I'm like, they all thought I would

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be okay. They all thought, you're strong like her. You know, you have

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lots of lessons from her. And it's really

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heartbreaking now. Like, I look back at the year

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now through the eyes of my daughter. When she turned

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my age, she brought it up to me. It wasn't even

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a milestone that I knew I was reaching until she.

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She told me, mom, how old were you when Grandma Ellen died? I also love

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that we call her Grandma Ellen. She was never a grandma, but I also

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impart her wisdom by sharing with my girls Grandma Ellen stories.

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And she kept reminding me, like, how much you need a mother

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at every age, I believe, but especially in those

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formative years, you know, like, your prefrontal cortex, like,

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just came online. You're having to deal with

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all of this. And the one thing that I'm really sad about is that

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people did say, you can't speak at

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her funeral. Like, it'll be way too much. And I'm so

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sad about that. I've written the. The eulogy that

Speaker:

I would have given and shared it and published it.

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And, you know, I've tried to sort of recreate

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and reconstruct what I'm very sad about.

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And yeah, I just think the way

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that the World met me at that moment

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was it wasn't even that the world was grief illiterate. It was

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just unspoken. It was. It was completely unspoken.

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And you went on with your life. My stepfather went back to work,

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and so we took his lead, and my sister got

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on an airplane, and she's five years younger than me, poor thing. And

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I went back to running a public relations firm and fashion shows

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during Fashion Week. I mean, now that I look at it, it's just so

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sad. To me, I have a lot of empathy and compassion for

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little Barry. That's really hard.

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It's really, really hard. And like, I. In

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93, like, I don't know what support was there. Like, I was

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only 8, and I don't remember any conversations around grief.

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Even when I was 20 and my aunt died. And so

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knowing that your mom, that happened, your mom was, you know, hopefully peacefully,

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you know, at one of her favorite spots, which is a beach,

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she, you know, went. And then you

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and your younger sister now have to navigate this world without

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your mother, your most important person. And there was no one talking

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to you, reaching out for support, sending you books. And

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there was no, like, links and stuff to send. No, it wasn't a year. It

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wasn't until a year that Hope Edelman published Motherless

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Daughters. I have to say, it was a whole year later that there was

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even really a book. I met a

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therapist a few years ago that was really an analyst, like a genius

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woman who said, you know, the story that I told myself was

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no one was talking about grief and grieving. And she says, my dear, I was

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most certainly in practice and talking to my

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people about grief. And so it was there.

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You just had to seek. And I think if you were not

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falling apart, you know, I. I looked strong

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and together, and I got the message from the world around

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me. The, the stronger you are, the

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more you get feedback from the world. And. And that's kind of the

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loop that it creates. Like, oh, I'm.

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I. I look okay. I. I'm signing new business.

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I'm going to work every day. I'm, you know,

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I guess eating, sleeping. Like, it was very basic. And I. My

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insides were screaming. Like, I would walk through places like

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Grand Central Station and see people going up escalators and down escalators

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and be like, where the are you going? Don't you

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know my mother died? Like, that's what I just wanted to

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scream. Now, sometimes I imagine

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a world where we're all wearing a T shirt that, you know,

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says exactly what we're ailing or what we're sick

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with or who we've lost. And like, then we meet each other

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with like the same kind of humanity and

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empathy that you and I meet one another. Because we, we share

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grief as like. A language we speak

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that's, that's so important. And I think now with the access

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to social media and websites, like, the

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speed at which information can be in our hands

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is so much faster. And I can't even

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imagine what it would have been like for you to be hit with this grief.

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And also not even knowing what resources to look for

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and how do you find it? No one even suggested it. Like,

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there wasn't so much as a pamphlet, post funeral,

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anything. Like really, I comb

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my memories for someone saying grief or grieving

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and it was not available. Zero.

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What do you wish? What do you wish? Like

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one. I mean, there's probably lots of things, but what do you wish that you

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knew then, that you know now? I mean,

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when I cracked open Motherless Daughters, I

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knew I wasn't alone. I think you cognitively know that I was not the

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first girl who had ever lost her mother. I was not the first 27 year

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old that had ever lost a mother.

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I. I wish I had

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a support circle. I wish

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I knew even one other person to talk to

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about it. I would have felt so much less alone. I had my sister,

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so we were this incredible island.

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Like, she knew everything that I was missing and,

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and I knew everything she was missing. But also, as the eldest,

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I felt a lot of maternal responsibility for her.

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And I have goosebumps when I say that. I

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really did. I just. Poor little Dana. Like, I

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just thought she really needs her. I

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didn't think that so much for myself, but

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I did for her. Deeply. Yeah.

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And it's hard because now you feel this pressure to be there

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for your sister, but who's being there for you?

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My mom's sister was very much there for us, but she was also

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missing her sister. So it was very. It also made

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me feel like the sad girl in the room if I

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spoke about my feelings, which I know

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now is like, we must. We must be

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seen, heard, witnessed. I needed my story.

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Witnessed. I needed. And so when I found those

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stories on the pages of that book and it.

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I just thought, someone knows. There's someone

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knows this, this, this Hope Edelman person. This, this

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person knows. And you know, fast forward to now. You know,

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I, I have sat shoulder to

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shoulder with Hope and been on Motherless

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Daughters retreats, helping support her with other

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motherless daughters. Like, I Never had anything like that. So

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I think I can't even imagine

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what my grief would look like if I had had

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that back then. I don't. I don't know how different it would be

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or not, because it taught me so much. Right. Taught me

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so much. It. Well, look, you created the memory

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circle. Yes. And like that. Like, how was that

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created? And did your mom have a hand in that?

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I. I started

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yoga teacher training. It was sort of just to

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deepen my practice. I've been doing yoga since

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around that time, early 90s. And

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I just wanted to get curious about why.

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I wasn't certain that I would ever teach. But it was such an important

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part of how I processed

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feelings. Like, I knew once my feet hit that mat was sort

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of like my magic carpet. It was, like, safe. The people

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were community. When I walked in, someone

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knew whether I had been away or I was there. The teacher knew

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your name. There was just a lot about that that felt

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good. And there was something spiritual about it that really was, like,

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pretty religious for me, if you will. Like, that spiritual

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presence was in my life. I think it's so funny because I think also

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my mom would have been kind of laughing about it

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because although she was very. Lots of parts blue, I

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think. I think it would have been a funny thing, like, oh, we're going to

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yoga again. Like, I think it would have been funny. But when I did my

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training, at the very end, we. We had to name what

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is called San Culpa, which is your

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heart's greatest desire. It sort of aligns with your

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dharma, your energy. It's sort of like how I describe when.

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When you have, like, a full body. Yes. It's just like

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you sit up straight in your seat. You know it's right. You know it's on

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purpose, and you state it in. And so mine

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was, I will start a motherless daughter

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circle. I will sit shoulder to shoulder with those who

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have experienced loss. And there it was. I mean, it

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was sort of and still is what I think of as

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the memory circle. I didn't name it. I just had a couple of events

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pre Mother's Day. I thought Mother's Day was, like, the hardest.

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I would curse the aisles, you know, of the Hallmark store, and

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anywhere there were cards, like, it would come earlier and earlier every year, and it

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would just make me so angry. So I was like, especially after I had

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kids, I was like, what if we took back Saturday and had these events on

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Saturday and then on the Sunday, That's Mother's Day in the Us, we

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would have our day where others wanted to celebrate us. Because I really

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just wanted to disappear in the past.

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And over time, I saw a

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shaman at a friend's suggestion, and

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one of the things she said to me was, you must collaborate. And that has

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also been one of those guiding words. Lights

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biggest part of my work that led to, like, first ever podcast

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with a dear friend and amazing human,

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Elena Brower, who happens to be my sister's college

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roommate. She was the only one I knew that had a podcast. She had all

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these famous authors on. I was like driving down Lakeshore

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Drive, if I could collaborate with anyone, who would it be? And her name

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came into my mind and I wrote her.

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And it like, was a boomerang how fast it returned. And

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I got an intake form from her assistant

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and it said, is there anything else you want us to promote? And it was

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a lengthy intake form. Out of my fingers,

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like magic, came the memory circle. I like, shouted out to my girls,

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look up Instagram and see if the memory circle is available. Look. I go,

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daddy, see if the memory. Before I hit send on the form. I just wanted

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to make sure that it was kind of free and clear.

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And I booked an event to

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promote Camp Erin. It was a free grief circle at a new

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photo at a new studio that a friend had opened called the Space

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Between. My friend Darren, and she

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realized in my doing so that her mother had experienced mother loss at a

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young age. Invited her mother, sort of saw it through my

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eyes, appreciating her mother's experience that she had

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never really noted, you know.

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And Darren gets a call after she puts it on

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the calendar, and it's from a woman who's a practitioner there.

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And she says, hey, this woman Cindy, who

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does the OK here called and said she wants to know if you want to

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collaborate. I was like, wait, what?

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So it turns out Cindy is a medium fast

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forward. She. She lives in my town in New York now. We both met

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in Chicago back when. So I said I

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would love to, but I need to make sure this person does not, you know,

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a kook. So I paid and booked an appointment with

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her. And I walked in and she said, your mom's been here all morning.

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And at the very end of our reading, she sort of dismisses, like all

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the energies and angels and spirits and guides and,

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you know, she's sort of closing out the our appointment. And she says,

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wait, wait, wait. Ellen has one more thing to say. Don't make

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it sad. So mom was completely on board.

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And I think my worry always

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Was it would define me as the sad girl. And my business would be like

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the business of being sad. And I knew otherwise from even the

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very few circles that I had done

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that. It was more like being a hope dealer. It really

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was much, much less about sadness and just giving

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people a place to put it down, process,

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be with it, swim in the soup, sit

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with others who get it. And I just knew it was anything

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otherwise, and I knew it was a need because people would say, there's nowhere

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to go for this. You're such a pioneer.

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And I love it. And I love. I love this story. I love that

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you're a hope dealer and that Ellen said, don't make it sad

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because there's enough of that. Yeah. And I

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think sometimes it is sad, but it's. But it's.

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It's a sad that is so universal

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in so many ways. Right there is this. I feel

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like I was born a little bit bittersweet, if you will. But it's like, to

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me, it's like a sad song or

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crescendo in music that like, brings tears to your

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eyes. I think I'm just so attuned to

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those big feelings. Like, I'm. It's. I'm so easy to. To

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tears. And I was often called, like, oh, you're so sensitive. You

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worry about worrying, but I feel like it's empathic. And in that

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same reading, my mom told the

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shaman that she was sorry she never fostered my gift. So I think

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my mom knew that I had this intuition that I had this,

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this guiding in intuitive guidance that

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I knew I knew. And, and I. And I used it in

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work because I feel like I

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could smell trends a mile away. Like, I used to know what was

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coming next, and I used to get really excited, kind of like,

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what's next? What's new? There was like this woman called

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Faith Popcorn that you all have to look up because she was a futurist.

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And there was so much about that that intrigued

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me. But I also had a lot of proof in the world,

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working in fashion and beauty and branding, that my

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instincts were. Were spot on. And it was outside of creativity. It

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was like sort of this, this knowing, this hunch.

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I love that. And

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so you're featured in our book

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and one of your tattoos is featured. Tell us about it.

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So on the morning of my 50th

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birthday, I didn't have much of a plan. My mom died at

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50. I think the year between 49 and 50. The story that was

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on loop in my head was, what if this is all you had

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left? What if this is all you had left? What if this is all you

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had left? And I can't remember anything like Giant I

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did that year, but when I woke up on that morning,

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I turned to my husband in bed and said, can you call

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Harlan? My husband has a sleeve of tattoos. Can you call

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Harlan and see if he'll see me today? I want to get

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my mom's signature on my wrist,

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and I wanted it on my left. I'm a lefty. Both parents were

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righty. Both my sister and I are lefty. And I wanted it on

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my left hand because of that, but also because it was close to my heart.

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And Alex didn't say anything about why

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I was going to. And Harlan said yes, and whatever time

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it was. And I went that afternoon and brought him a

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little sketch. He had a. He had to open up some of her loops so

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that over time it wouldn't close in on itself. But I

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guess by law, you have to have an id, even though he knew me.

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And so I handed him my license and he said, today's your

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birthday. And I said, yes. And then I told him the why and

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the whole thing. And he said, oh, that's on me. And I was like, oh,

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Ellen loved a discount. And it was really just so funny.

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It was very sweet and. And lovely. And I think my mom would

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be absolutely horrified that I got a tattoo.

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But I think we also make those kind of like,

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middle finger choices in life. Like, you're not here. I'm gonna

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do this anyway, you know? Yeah, I do. Yeah.

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As soon as my mom died, my. Sister and I both went on Accutane because

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our mom would never let us. And I was like, she's not here.

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Right. I mean, I know. I mean, I moved

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from New York to Chicago. I think I thought I could outrun

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my grief and said yes by moving away. But

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I. Yeah. She never would have

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let me leave the Tri State area if she were alive.

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That would not have happened. And I think of all the things that happened

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because of. Not in spite of, but because of. And.

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And I. I see all of those. Not. Not

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because everything happens for a reason, because that makes

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me shake like nails on the tree.

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But my friend Kathy says that which is right is

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unfolding. And that really resonates with

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me that when I look at how it all unfurled,

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I believe so much of it to be true. Like, I didn't grow up and

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be like, I know what I'm gonna be when I'm older. You Know, I always

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wanted to be a writer, but I never in a million years

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would have thought that I would be a

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grief specialist and train with Hope Edelman and train with

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Claire Biddlewell Smith. People's books who I had read

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later in life that were life

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changing, altering, and.

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Yeah. And that ink has

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meant so much to me, and it has opened so many conversations

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everywhere I go. That's. That's

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also interesting. It's like. It's like a little

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invitation. Yeah. I love it.

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I love the tattoo and the meaning behind it. It definitely resonates

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for similar reasons. I have my mother's signature, and that's something you and I both

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bonded on. You know, there's something so special about having the writing

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on us permanently, and it brings that feeling of comfort.

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And I'm right handed and my mom's signature's on my arm, so it's like anytime

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I'm creating and doing things, she's with me. And I don't know. I absolutely

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love that and that, you know, you were able to take your

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experience and build this career and this path.

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And I want to fast forward to recently to January.

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You lost your dad, Neil. Yeah. And this was a

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different type of loss. Yeah. How do you think

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losing your mom and the work that you've been doing in the grief space

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laid a foundation for you knowing what was to come?

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I had lots of presents.

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I knew from the day

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that he had a mild cognitive

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impairment diagnosis that I

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was on a ride, that I was

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going to soak up every last memory

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we had. And I think I was already. It's

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ironic that the memory circle was named what

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it was because after my mom's death, I became sort of

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a keeper of memories. She was so much more a doer,

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really. Like her, her days had, like, 26 hours and everybody else's had

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24. She was always doing. She was like,

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last at the beach and last at the mall and, like, soaking it all up.

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And we were always running on E in the car. And she was like

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my dad.

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The memory circle, to me then meant

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holding his. All of the memories so tightly

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as we were in it and

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learning about caretaking and decision making on

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his behalf. And as the eldest daughter, I had

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some really hard conversations with him

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that I'm not sure my siblings would have been

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ready to have. And I think that came from my work also, because

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I'm like the bossy older sister. But,

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yeah, what do you want? What's best for you

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if you can't make decisions on your own? And

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we have to make them for you. What are your wishes? And we really knew.

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And I think that creates what I call

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clean grief. Like, I will always miss him and can't believe

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there's a world in which Neil David Leiner does no longer live.

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But I knew that

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everything he wanted was what we were carrying out.

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We were also his

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advocates. We fought for dignity

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and educated people along the way. I shared

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our story and at the same

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time, I really met him exactly where he was

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all the time. But I had this sort of built in

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little reminder that we were making

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memories as we were going along. So I had

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oodles of pictures I didn't want to forget. Like, the

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cadence of his walk. I

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wanted to hear I love you more than the whole wide world. And his voice,

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which is another tattoo that I have on my side because he signed

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every letter. I was just gonna ask, what are we doing for Neil? Yeah, he

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signed every. Got it already. And I got it when he was alive because that's

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amazing. I wanted to show him and see if he

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remembered, you know, we remembered for him. We

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told him stories. We told him stories about himself. Like, I

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was so present in

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grieving while he was there and knowing what it was going to

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be like, or at least guessing what it was going to be like on the

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other side. And 50 versus

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86 was hugely different. It felt like a

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very full life. I was very Sad about the 10 years that I feel

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like this guy with this brilliant brain,

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incredible advertising creative, who had worked on the very

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first breast cancer drugs and so many breakthrough ad campaigns and

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won awards and was beloved by

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clients. You know, I was so sad that

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to see his creativity go, but, like, little lights

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would shine. Like, his sense of humor was, like, so spot on and

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so quick. And every now and again, we would just

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know he was in there. I got to read essays

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aloud that I wrote and share, you

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know, the resiliency book and essay I wrote

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about him. And there was just so much that I was.

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I had this newfound awareness and even

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calling on palliative care and calling on hospice and

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filling out a whiteboard in his hospital room, like,

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my name is Neil. Call me Neil. I have dementia.

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I wear hearing aids. Like, we learn how to advocate in such a

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way that it makes me so proud now

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to share what we learned. I have two

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brothers. I hate to call them half brothers. My dad remarried and

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had twins with my stepmother. And

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my dad's. He calls his. All his social media was like,

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Grampcy four. And, you know, like, he. He was very about the

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four of us. And so I always say, like, the liner four was a

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force. We were connected,

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cohesive, all for one and one for all. If one

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wasn't comfortable, we didn't do it. And we all had our own

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strengths. You know, my sister said I

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had the boxing gloves on and, you know, was sort

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of everywhere we went, like, really fighting, not just for

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my dad, but sort of the advocacy of all

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elders and all elders who show up at the hospital who

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have memory loss. Could we have training? Could we, you know,

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can we do better? Can we do better? Mm. I

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think that's absolutely beautiful. And Neil is so proud of you. Oh,

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thank you. And may Neil's memory be a blessing. And I can't wait for you

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to show me your tattoo when I see you. Yeah, I love it in November,

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but for sure, in January. Yeah. Yeah. Oh, you know, and

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I think it's like, Ellen was giving you these gifts to

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prepare you and to leave that legacy.

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And how lucky is Neil to have you as

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a daughter and the, you know, siblings you have, like,

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what a gift that is. And we were all there on the

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day that he died, and we played his favorite music, and we.

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I encouraged everybody to take photos, you know, holding his hand. Like,

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his hands. Like, there's something about hands in our family that are

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just. You never forget what it's like, those

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hands that hold your hands. And I tell that to everybody.

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I have a friend that's going to visit someone today who

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is dying, and I said the same thing. Take pictures of your

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hands together. Oops. Yeah, it's. It can be

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so beautiful just. Just to have that and remember. But my mom

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was before social media. My dad was like, the guy

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was on social media. So I don't know. I have so many

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pictures and such a large digital footprint.

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I'm not, like, a giant fan of having my photo taken, but I

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think about it for my girls, that is part of memory making. I

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want them to have that when I'm gone,

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too. And what a gift that

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you recognize that. What a

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gift. Is it a gift? I think so. I mean, I

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know that when I'm feeling really griefy, I turn to a shoebox of photos,

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and I only have so much online and, like, Instagram deactivated

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our mother's Instagram account without any sort of warning. And so, like,

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that felt like this whole new grief. And so taking photos and

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putting them somewhere where, you know, maybe you're developing them or putting them in books,

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like, having, like, the physical memories, you know. We need to Print

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them. Like, if. If you're listening and you don't have a little framed

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picture on your, you know, bedside desk. I also love when

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they're around the house like that, because I'm, like, passing by them every day. You

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know, they're. They're part of. Part of home. Yeah. And I

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love now the technology. You can just like, oh, you had this. This experience. Like,

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it's like a vacation or, you know, and there's multiple pictures. You can just print

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them in a book and have that on display. Or, you know, I. And

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I have one in my office. From a vacation that we took with dad.

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Yeah. For his 80th birthday. It's like, you know, him

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under this, like, waterfall,

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like, his. Living his best pina colada life. Like, that's

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amazing. You know, my mom used to complain because there was never,

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like, there wasn't a lot of pictures of me, my mom, and my sister in

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our adult life. And right before the pandemic, we did a trip to Palm Springs,

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and there's this company called Flytographer, and it's my friend's company, and I love it.

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But we booked a photographer and we did a photo shoot in the desert. And

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then, like, a couple weeks later, the world shut down, and then she died. So

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we have these really beautiful photos, which was a gift that we got for mom.

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So we got actually this final photo shoot. And it's like, I wish

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we had more. I wish we started earlier, like,

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you know, and so if you're listening, like, listen to Barry and me. Like, take

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as many possible. Like, we know now, because you can't just, like, make new

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photos. I mean, with AI, you can, but that's not. That's weird. Kind of

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freaky. Yeah. I wish I. I had also asked,

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like, all the relatives for the pictures they had

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of my mom. I get surprise

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ones every now and again, which is such a treat. Like, her old

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boss at the real estate firm, her daughter was, like, cleaning out

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the mom's things and found, like, a picture of my mom that I had never

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seen. It was like a headshot of some sort that my mom took and another

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one from some fundraising event. So every now and again, like, I get, like, a

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little. A little sparkle, a little sprinkle. So if you know that there might

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be some people that had photos of your loved ones, ask them,

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too. Sometimes I make appointments to talk to my mom's old friends so I

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can, you know, connect. I love that. You know, it's so being

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Jewish. I don't know if this Relates to you. I had a Bat Mitzvah. And,

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like, for us, it was a trend to, like, have these poster boards, and so

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you'd have pictures and then everyone would sign it. And my sister,

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because my mom doesn't exist anymore. Well, she's not. Her house doesn't exist anymore. So

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my sister has, like, my stuff up in her house, like, because I'm not going

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to carry some of this stuff across the country because inevitably I'll probably end up

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back here at some point, but. And I have my own

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room here. But my sister has my bat Mitzvah board app. And I spent time

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yesterday looking at all the messages, and I found the one from my mom's mom,

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who's no longer here. And I found the message from my mom about being so

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proud of me, which is a common, like, theme, which is what

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inspired the tattoo book, which you're going to have to read the book to learn

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about it. My dad's message was love dad. But it's just like

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not be the photo, but it's like this message that is there. And

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it's the same thing. Like, if you find old birthday cards, like, I used to

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never keep birthday cards. If I find a card that was written from

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someone that is no longer here, I keep it now because I didn't care about

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having that. But now it's like those pictures and those notes mean more. I have

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this on. On my desk, and I. I've posted about this, but my friend

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Lisa realized that when she friend Cindy, she didn't have any

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notes from Cindy. And so she started this thing called the Orange Envelope

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Project as a tribute to her friend Cindy. And she sent everyone

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who had meaning to her in her life and told us

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why in this little project. So that we have a written card

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from Lisa to honor Cindy. And it came in this giant

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orange envelope, and I posted about it with Lisa's permission,

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because this is a very easy way to

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honor someone. It's a great thing to do if you're honoring the memory of someone

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you've lost. But also, I was so

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touched reading about how

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I'm perceived by Lisa while we were all. While we were all alive.

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Thank you very much. Whoa. I love that. Can you send me

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that social media post? So I just had this idea because I do a lot

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of traveling for the work that I do because I don't have kids, and I

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have this freedom, and I do a lot of work in the grief space, helping

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Grief trips. Co facilitating grief trips. And I'm like,

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you know what I'm bringing back Sending postcards. And not just to my.

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I'm going to send them to myself. So in the moment, if I'm having a

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moment, I want to write a postcard to myself and send it, but I'm going

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to start sending postcards to the people I love again. And I

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think also bring mom into the conversation. Like, if you

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wrote postcards to heaven, like, they don't even have to have an

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address. Yeah, or. Or I could write them to mom and mail them to me.

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Yes, that's what I was just gonna say. Yeah, but I mean, postcards also, it's

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like around the. I don't know. Anyways, I just recently had that idea. Cause I

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was like, you know, like, I miss getting non bills in the mail.

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I'm like, I'm just gonna start sending myself mail. Like, I mean, I'll send it

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to Shane, but it'll be to me, you. Know, I love that. Oh,

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I love that too. Okay, so we're. We're getting close to time here. And I

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feel like I can talk to you forever, because I can. And

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I really, like, I think this is just the tip of the iceberg. And you

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are, I'd say, one of the pioneers in the grief space. And you're my unofficial,

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like, mentor. And I look up to you like my big sister in grief.

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You know, me and B B and me. Double B.

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What advice do you want to share today to someone

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who's going through something similar or something that they can relate to in

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your story? You know, people often ask me

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for parenting advice, especially motherless mothers.

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And what I always try to impart is

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find ways to be proud of yourself. The thing that

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I lost the most when my mom died. She was my greatest

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cheerleader. So too was my dad.

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But there was something about their affirmation because

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Ellen had a really high bar in the best

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way. And I missed so much the

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idea of her being proud of me. So it's kind of twofold.

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Learning to be proud of yourself and not waiting

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for opportunities to be remothered.

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I mean, the nurturance that's lost.

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Sometimes it feels in the beginning that you

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have to go it alone because you've lost the person that used to

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be like the world, world's greatest collaborator and cheerleader of your

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entire existence. And you have other

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relationships. And I was married. But there was just

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something about that

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mothering feeling. And for a very long

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time, I didn't allow it. And Sometimes it's because

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I felt young or

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immature, like, I had missed out on something. And so I had questions.

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I needed advice. And I really thought, like, there was something

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between needing to go it alone and toughing

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through and riding solo

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and then really having, like, weird

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feelings about betrayal to my mother and,

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I don't know, even awkward female friendships because of

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it, that I feel like, do not wait

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to find opportunities to feel that sense

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of remothering. Notice when you're feeling

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held and. And feeling that way because you need it. And

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we all. We all need it. And if you. I love that advice.

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And, like, yes. Like, I know

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as someone whose mother is gone, like, I will take all the mothering.

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I'll take all the mothering. Like, I saw a childhood friend the other day, and

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her mom gave me the biggest hug, and it just felt so. Like I'm at

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home. Yeah. And I think that advice is

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so important. And also being proud, like, that's how this all started, with a

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tattoo of my leg that says proud of you, which was from my mom. And

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I think that's so important. And I think if Snoop Dogg. Snoop Dogg makes this

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speech, I think it's. He's getting the walk of fame star. And he goes, I'd

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like to thank me. For me, like, I. It's like, be like,

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snoop Dogg. Be proud of yourself. And, like, acknowledge it out loud and

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share it. Yeah. I tell my girls, I'm like, I'm so

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proud of you, but I want you to be proud of you. Yeah.

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Yeah. Your name is on that work. You know, they'd say to me, do you

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think it's good? I'm like, do you think it's good?

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Yeah. Be proud of the way that you show up in the world. And

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be like. You said, be proud of you. The voice that we listen

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to the most is our own.

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Be kind. Be proud.

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Yeah. I think a lot of the connection

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that you and I have made to me, the way you reflected

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back to me feels. Feels like there's, like, lots of maternal undertones, and I

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think sometimes we can confuse it as a motherless daughter. I lost my mom

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a long time ago. I don't really know the difference between

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mentoring and remothering. Well, that's all semantics.

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It is. It is, but I mean. Yeah. And I. But it's like,

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it's a friendship. It's a friendship. And I believe that

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we take care of one another when we need it, and that is

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mothering. It's a kinship, and it has nothing to do with

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kids. Yeah. It's like we're all mothers. Yeah.

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You know, mother nature, like all of it. I think we all

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need to be nurtured and wherever you can get it.

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Yeah. Mother nature, motherfucker. All the mothers. Exactly. All the

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mothers. Ellen was. She'd be so proud of you. She was

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curse like a sailor and as do I. So. Hey.

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Yes, yes, Ellen. Another science. Now there's science. I wish

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she had lived long enough to know that, like scientifically it's like smart

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and also great for emotional release. Yeah,

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I love that. Well, Barry, this has been a slice all of the ways to

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contact and get in touch and follow Barry as in the show notes

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you can read her story about her Ellen tattoo in

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resilient AF skin deep stories. So so thank you so much for joining

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us today. Thank you. Love you. Love you. And thank

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you to everyone who tuned into this episode. Just remember, you

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are not alone. And if it's okay to not be okay, but let us be

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that lighthouse in the storm. We can walk this life together. And

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friends, just remember you are resilient,

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afraid.

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