Barri Leiner Grant was the caretaker for her dad. This is her story and she is RESILIENT A.F.
Buy the books: https://theglobalresilienceproject.com/books/
Griefy Gals on TikTok: https://www.tiktok.com/@griefygals
About the Guest:
Barri Leiner Grant is a well-respected grief specialist. author and founder of The Memory Circle: for those learning to live with loss. As coach, educator and advocate, she holds transformative gatherings and workshops to explore grief tending tools and techniques that foster community, hope and healing. She is a recovering journalist with stints at The Chicago Tribune and Chicago Magazine. Her work has been featured in The Washington Post, Psychology Today, Maria Shriver’s Sunday Paper among others. Her popular Substack, Permission Granted, shares more of her personal essays and looks at life and loss through a modern lens. She honors her Dad today who died in January after living with memory loss and Alzheimer’s for a decade.
Links
http://www.thememorycircle.com/
⚠️ Content Note: Some episodes may contain themes that could be distressing. Please take care of yourself while listening, and don’t hesitate to seek support from a mental health professional if needed.
About the Hosts:
Blair Kaplan Venables is a British Columbia-based grief and resilience expert and coach, motivational speaker and the Founder of The Global Resilience Project. Her expertise has been featured on media platforms like Forbes, TEDx, CBC Radio, Entrepreneur, and Thrive Global. She is named the Top Grief and Resilience Expert of the Year 2024 by IAOTP. USA Today listed Blair as one of the top 10 conscious female leaders to watch and she empowers others to be resilient from stages around the world. 'MyStory,’ which is a television show available on Amazon Prime Video, Apple TV+ and Google Play, showcases Blair's life story. She is the host of the Radical Resilience podcast and specializes in helping people strengthen their resilience muscle using scientifically proven methods and guides grieving high performers with her Navigating Grief Framework. The Global Resilience Project’s award-winning book series are international bestsellers, and her fourth book, RESILIENT A.F.: Stories of Resilience Vol 2, will be published in January 2025. In her free time, you can find Blair writing, in nature, travelling the world and helping people to strengthen their resilience muscles.
Links:
https://theglobalresilienceproject.com
https://www.linkedin.com/in/blairdkaplan
https://www.facebook.com/blair.kaplan
https://www.facebook.com/BlairKaplanCommunications
https://www.instagram.com/globalresiliencecommunity
https://www.instagram.com/blairfromblairland/
https://www.facebook.com/globalresiliencecommunity
https://www.linkedin.com/company/the-global-resilience-project
Alana Kaplan is a compassionate mental health professional based in Winnipeg, Manitoba, Canada. She works in the mental health field, and is a co-host of the Resilient A.F. podcast. Fueled by advocacy, Alana is known for standing up and speaking out for others. Passionate about de-stigmatizing and normalizing mental health, Alana brings her experience to The Global Resilience Project’s team, navigating the role one’s mental health plays in telling their story.
Engaging in self-care and growth keeps her going, and her love for reading, travel, and personal relationships helps foster that. When she’s not working, Alana can often be found on walks, working on a crossword puzzle, or playing with any animal she sees.
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Transcript
The one thing that I'm really sad about is that people did say,
Speaker:you can't speak at her funeral. Like it'll be way
Speaker:too much. And I'm so sad about that. I've written the
Speaker:eulogy that I would have given and shared it and
Speaker:published it. And, you know, I've tried to
Speaker:sort of recreate and reconstruct what I'm very sad
Speaker:about. And yeah, I just think the way that
Speaker:the world met me at that moment was it wasn't even that
Speaker:the world was grief illiterate. It was just unspoken.
Speaker:It was completely unspoken. And you went on with your life.
Speaker:My stepfather went back to work and so we took his lead and my sister
Speaker:got on an airplane and she's five years younger than me, poor thing.
Speaker:And I went back to running a public relations firm and
Speaker:fashion shows during fashion week. I mean, now that I look at it, it's just
Speaker:so sad to me. I have a lot of empathy and compassion for little
Speaker:Barry. Welcome back to another episode of
Speaker:Resilient AF with Blair and Alana. But pause the Alana
Speaker:and bring in Barry. Oh my gosh, Barry.
Speaker:She's my unofficial mentor in the professional grief space.
Speaker:The moment I met her, I fell in love. We have a lot of
Speaker:similarities with our career paths. I love her
Speaker:vibe. She's one of the most stylish people and I got to meet her in
Speaker:person and I can't wait to see her again in person coming up. But
Speaker:she is a well respected grief specialist, author and founder
Speaker:of the Memory Circle for those learning to live with loss.
Speaker:As a coach, educator and advocate, she holds transformative
Speaker:gatherings and workshops to explore grief tending tools
Speaker:and techniques that foster community hope and healing.
Speaker:She's a recovering journalist with stints at the Chicago Tribune.
Speaker:Tribune, Tribune, Tribune, Tribune. That's so Canadian of me,
Speaker:the Chicago Tribune and the and Chicago Magazine. Her work's
Speaker:been featured in the Washington Post, Psychology Today, Maria
Speaker:Shriver's Sunday paper, amongst others. Her popular
Speaker:substack Permission Granted shares more of her personal
Speaker:essays and looks at life and loss through a modern
Speaker:lens. Her writing is amazing. Go follow her. Her links are below.
Speaker:She honors her dad today who died in January after living with memory
Speaker:loss and Alzheimer's for a decade.
Speaker:Am so honored that we have shared her story in Resilient AF
Speaker:Stories of Resilience Volume 2 and she's going to be in our
Speaker:forthcoming book. Well, by the time you listen to this, maybe this is already.
Speaker:The book's already out. But Resilient AF Skin Deep Stories.
Speaker:So welcome to the show. Barry, I'm so glad
Speaker:to be here. It's so much fun and also such
Speaker:an honor. I. I think collaboration is
Speaker:the best part of our work in the world and you make that
Speaker:so effortless. Oh, well, thank you. I mean, I really do like,
Speaker:believe humans are meant to heal as community.
Speaker:And it's so. Grief is so individualized and it
Speaker:can be very isolating. So I believe as a griever, we should
Speaker:heal together. But also as a grief and resilience expert,
Speaker:I believe in lifting while I climb. And, you know, the more
Speaker:people that we can help, the better. Because especially now, it's
Speaker:so heavy out there. It sure is. It sure is. And
Speaker:I don't really want to do it alone. I learned that lesson
Speaker:while grieving. You know, in:Speaker:grieving. And I lost my mom. Suddenly I was
Speaker:lots of things. She knew about me. I was a publicist.
Speaker:I then later was a journalist. She
Speaker:knew all about my writing and all about all of that. And I think
Speaker:the story that I told myself back then was she'd be good and pissed if
Speaker:I define myself in any way by her death.
Speaker:And it did define me. And it took me a really
Speaker:long time to realize that
Speaker:I wanted her to continue to know me, to be proud of
Speaker:me, to have that connective tissue. And so
Speaker:with every, like, motherless daughter that I would meet along the way
Speaker:or griever, it felt like it was tapping,
Speaker:but I wasn't answering. I was a little
Speaker:afraid. And I'm so glad I
Speaker:made the break. So in 93,
Speaker:your mom passed away. First of all, what's your mom's name?
Speaker:Ellen. You know, I always ask that. I know. And I've started
Speaker:doing it because of you, because I think 1. People always
Speaker:use the past tense like her name was. It's like, actually, no, it's still her
Speaker:name. And people light up when you ask them. Them?
Speaker:Yeah, I mean, one of my favorite practices, which I've shared with you,
Speaker:is that I'll often order my takeout or
Speaker:a coffee. I giggle when I order bubble tea
Speaker:because it's so not Ellen. But I use her name when they
Speaker:say, you know, name for the order. And hearing it ring out, you
Speaker:know, we. We need to continue to talk about them and bring them into our
Speaker:everyday conversations. It. It keeps her alive
Speaker:and. And it really is so much fun. It's an easy thing and an
Speaker:easy grief tending tool. And again, I do that because of you. And
Speaker:I only just started and the first time I did it With Sharon,
Speaker:the person maybe have never heard the name Sharon before. And they spelled it, like,
Speaker:completely like S H E R E N. I was like, that's unique. And they
Speaker:yelled out Sharon. And I was like, oh, that's so cool. And then
Speaker:on the way to Winnipeg for the high holidays, I did
Speaker:Len. Like, my dad's Leonard. But I was like, I'll just do Len. And it
Speaker:was just fun. And I'm like, this is when I remember to do it. If
Speaker:I go in person at Starbucks or a coffee shop, not only only do I,
Speaker:like, do it, but I always think of you because I'm doing it because of
Speaker:you. And it is really nice. And I think it's a really beautiful.
Speaker:A beautiful way to feel the presence of those who are
Speaker:gone. And ritual is the way that I have learned over time
Speaker:to connect to my mom, to carry her
Speaker:memory forward. And now figuring out what that looks like for my
Speaker:dad. It was like, you know, pumpkin spice day on my
Speaker:dad's birthday. And so it was super fun. It was the first time
Speaker:I had ever done it in my dad's name. His name is Neil. And it
Speaker:was. It was really fun and funny and
Speaker:everything else about, like, our. Our gathering was
Speaker:kind of crap. We were. We were. We were like, we can't
Speaker:eat there anymore. Like, the food isn't good if we're not with dad. Like, a
Speaker:lot of things that we did with him, we felt like it was like some
Speaker:kind of a sign for my dad to be like, yeah, don't go back to
Speaker:all those spots without me. So,
Speaker:yeah. And so I know you've recently lost your dad. You lost your mom
Speaker:in 93. Let's talk a bit about Ellen. Tell us about Ellen,
Speaker:what your life was like at that time when you lost her. I
Speaker:was in my late 20s and
Speaker:she was healthy, 50. Took
Speaker:the day off, called us all. We were all in our places, as I
Speaker:always say. My. I was tucked into a PR agency that I
Speaker:started that she knew all about. She had just moved my sister into
Speaker:her very first job, an apartment in Denver. She was
Speaker:giddy that she had scalped us open
Speaker:golf tickets for my stepfather. She was, like, so excited. She thought it was,
Speaker:like, breaking rules and nearly illegal. And.
Speaker:And she took the day off, and she didn't go to the
Speaker:normal place where we usually go to the beach, which was like a
Speaker:club where she played, like, Scrabble. Not a fancy place, but, like,
Speaker:everybody in New Jersey sort of has a place where you hang your towel and
Speaker:your swimsuit and A locker and whatever. And she
Speaker:didn't go there that day. She went to the public beach, which is called Sandy
Speaker:Hook. It's a beautiful national. And
Speaker:she fell asleep in her beach chair. She had an aneurysm. And
Speaker:we only found out because the sun set on this
Speaker:day and a couple was there and knew that they
Speaker:were about to leave her alone and thought she had just slept. And
Speaker:so we're tapping her on the shoulder and couldn't wake her. The woman happened
Speaker:to be a nurse, which is incredible. But because it was all before
Speaker:cell phones, you know, they had to find a payphone and 9, 1 1.
Speaker:And she was very much gone by the.
Speaker:And we knew she wanted her organs
Speaker:donated. And so they waited until
Speaker:my sister and I got there to sort of make the decision. And
Speaker:all of our goodbyes. Goodbyes that I would have changed
Speaker:entirely. Knowing what I know now was so shocking. It was so
Speaker:traumatic. And nobody really
Speaker:asked if we needed to talk to anybody.
Speaker:Nobody called it sad,
Speaker:overwhelming. Like, I just think, what the hell were the grown ups doing?
Speaker:Like, and they were grown ups. People treated me like I was one too.
Speaker:I had just lost the most important person,
Speaker:most unbelievable woman on the
Speaker:planet. I don't know where, you
Speaker:know, now I look back at it and I'm like, they all thought I would
Speaker:be okay. They all thought, you're strong like her. You know, you have
Speaker:lots of lessons from her. And it's really
Speaker:heartbreaking now. Like, I look back at the year
Speaker:now through the eyes of my daughter. When she turned
Speaker:my age, she brought it up to me. It wasn't even
Speaker:a milestone that I knew I was reaching until she.
Speaker:She told me, mom, how old were you when Grandma Ellen died? I also love
Speaker:that we call her Grandma Ellen. She was never a grandma, but I also
Speaker:impart her wisdom by sharing with my girls Grandma Ellen stories.
Speaker:And she kept reminding me, like, how much you need a mother
Speaker:at every age, I believe, but especially in those
Speaker:formative years, you know, like, your prefrontal cortex, like,
Speaker:just came online. You're having to deal with
Speaker:all of this. And the one thing that I'm really sad about is that
Speaker:people did say, you can't speak at
Speaker:her funeral. Like, it'll be way too much. And I'm so
Speaker:sad about that. I've written the. The eulogy that
Speaker:I would have given and shared it and published it.
Speaker:And, you know, I've tried to sort of recreate
Speaker:and reconstruct what I'm very sad about.
Speaker:And yeah, I just think the way
Speaker:that the World met me at that moment
Speaker:was it wasn't even that the world was grief illiterate. It was
Speaker:just unspoken. It was. It was completely unspoken.
Speaker:And you went on with your life. My stepfather went back to work,
Speaker:and so we took his lead, and my sister got
Speaker:on an airplane, and she's five years younger than me, poor thing. And
Speaker:I went back to running a public relations firm and fashion shows
Speaker:during Fashion Week. I mean, now that I look at it, it's just so
Speaker:sad. To me, I have a lot of empathy and compassion for
Speaker:little Barry. That's really hard.
Speaker:It's really, really hard. And like, I. In
Speaker:93, like, I don't know what support was there. Like, I was
Speaker:only 8, and I don't remember any conversations around grief.
Speaker:Even when I was 20 and my aunt died. And so
Speaker:knowing that your mom, that happened, your mom was, you know, hopefully peacefully,
Speaker:you know, at one of her favorite spots, which is a beach,
Speaker:she, you know, went. And then you
Speaker:and your younger sister now have to navigate this world without
Speaker:your mother, your most important person. And there was no one talking
Speaker:to you, reaching out for support, sending you books. And
Speaker:there was no, like, links and stuff to send. No, it wasn't a year. It
Speaker:wasn't until a year that Hope Edelman published Motherless
Speaker:Daughters. I have to say, it was a whole year later that there was
Speaker:even really a book. I met a
Speaker:therapist a few years ago that was really an analyst, like a genius
Speaker:woman who said, you know, the story that I told myself was
Speaker:no one was talking about grief and grieving. And she says, my dear, I was
Speaker:most certainly in practice and talking to my
Speaker:people about grief. And so it was there.
Speaker:You just had to seek. And I think if you were not
Speaker:falling apart, you know, I. I looked strong
Speaker:and together, and I got the message from the world around
Speaker:me. The, the stronger you are, the
Speaker:more you get feedback from the world. And. And that's kind of the
Speaker:loop that it creates. Like, oh, I'm.
Speaker:I. I look okay. I. I'm signing new business.
Speaker:I'm going to work every day. I'm, you know,
Speaker:I guess eating, sleeping. Like, it was very basic. And I. My
Speaker:insides were screaming. Like, I would walk through places like
Speaker:Grand Central Station and see people going up escalators and down escalators
Speaker:and be like, where the are you going? Don't you
Speaker:know my mother died? Like, that's what I just wanted to
Speaker:scream. Now, sometimes I imagine
Speaker:a world where we're all wearing a T shirt that, you know,
Speaker:says exactly what we're ailing or what we're sick
Speaker:with or who we've lost. And like, then we meet each other
Speaker:with like the same kind of humanity and
Speaker:empathy that you and I meet one another. Because we, we share
Speaker:grief as like. A language we speak
Speaker:that's, that's so important. And I think now with the access
Speaker:to social media and websites, like, the
Speaker:speed at which information can be in our hands
Speaker:is so much faster. And I can't even
Speaker:imagine what it would have been like for you to be hit with this grief.
Speaker:And also not even knowing what resources to look for
Speaker:and how do you find it? No one even suggested it. Like,
Speaker:there wasn't so much as a pamphlet, post funeral,
Speaker:anything. Like really, I comb
Speaker:my memories for someone saying grief or grieving
Speaker:and it was not available. Zero.
Speaker:What do you wish? What do you wish? Like
Speaker:one. I mean, there's probably lots of things, but what do you wish that you
Speaker:knew then, that you know now? I mean,
Speaker:when I cracked open Motherless Daughters, I
Speaker:knew I wasn't alone. I think you cognitively know that I was not the
Speaker:first girl who had ever lost her mother. I was not the first 27 year
Speaker:old that had ever lost a mother.
Speaker:I. I wish I had
Speaker:a support circle. I wish
Speaker:I knew even one other person to talk to
Speaker:about it. I would have felt so much less alone. I had my sister,
Speaker:so we were this incredible island.
Speaker:Like, she knew everything that I was missing and,
Speaker:and I knew everything she was missing. But also, as the eldest,
Speaker:I felt a lot of maternal responsibility for her.
Speaker:And I have goosebumps when I say that. I
Speaker:really did. I just. Poor little Dana. Like, I
Speaker:just thought she really needs her. I
Speaker:didn't think that so much for myself, but
Speaker:I did for her. Deeply. Yeah.
Speaker:And it's hard because now you feel this pressure to be there
Speaker:for your sister, but who's being there for you?
Speaker:My mom's sister was very much there for us, but she was also
Speaker:missing her sister. So it was very. It also made
Speaker:me feel like the sad girl in the room if I
Speaker:spoke about my feelings, which I know
Speaker:now is like, we must. We must be
Speaker:seen, heard, witnessed. I needed my story.
Speaker:Witnessed. I needed. And so when I found those
Speaker:stories on the pages of that book and it.
Speaker:I just thought, someone knows. There's someone
Speaker:knows this, this, this Hope Edelman person. This, this
Speaker:person knows. And you know, fast forward to now. You know,
Speaker:I, I have sat shoulder to
Speaker:shoulder with Hope and been on Motherless
Speaker:Daughters retreats, helping support her with other
Speaker:motherless daughters. Like, I Never had anything like that. So
Speaker:I think I can't even imagine
Speaker:what my grief would look like if I had had
Speaker:that back then. I don't. I don't know how different it would be
Speaker:or not, because it taught me so much. Right. Taught me
Speaker:so much. It. Well, look, you created the memory
Speaker:circle. Yes. And like that. Like, how was that
Speaker:created? And did your mom have a hand in that?
Speaker:I. I started
Speaker:yoga teacher training. It was sort of just to
Speaker:deepen my practice. I've been doing yoga since
Speaker:around that time, early 90s. And
Speaker:I just wanted to get curious about why.
Speaker:I wasn't certain that I would ever teach. But it was such an important
Speaker:part of how I processed
Speaker:feelings. Like, I knew once my feet hit that mat was sort
Speaker:of like my magic carpet. It was, like, safe. The people
Speaker:were community. When I walked in, someone
Speaker:knew whether I had been away or I was there. The teacher knew
Speaker:your name. There was just a lot about that that felt
Speaker:good. And there was something spiritual about it that really was, like,
Speaker:pretty religious for me, if you will. Like, that spiritual
Speaker:presence was in my life. I think it's so funny because I think also
Speaker:my mom would have been kind of laughing about it
Speaker:because although she was very. Lots of parts blue, I
Speaker:think. I think it would have been a funny thing, like, oh, we're going to
Speaker:yoga again. Like, I think it would have been funny. But when I did my
Speaker:training, at the very end, we. We had to name what
Speaker:is called San Culpa, which is your
Speaker:heart's greatest desire. It sort of aligns with your
Speaker:dharma, your energy. It's sort of like how I describe when.
Speaker:When you have, like, a full body. Yes. It's just like
Speaker:you sit up straight in your seat. You know it's right. You know it's on
Speaker:purpose, and you state it in. And so mine
Speaker:was, I will start a motherless daughter
Speaker:circle. I will sit shoulder to shoulder with those who
Speaker:have experienced loss. And there it was. I mean, it
Speaker:was sort of and still is what I think of as
Speaker:the memory circle. I didn't name it. I just had a couple of events
Speaker:pre Mother's Day. I thought Mother's Day was, like, the hardest.
Speaker:I would curse the aisles, you know, of the Hallmark store, and
Speaker:anywhere there were cards, like, it would come earlier and earlier every year, and it
Speaker:would just make me so angry. So I was like, especially after I had
Speaker:kids, I was like, what if we took back Saturday and had these events on
Speaker:Saturday and then on the Sunday, That's Mother's Day in the Us, we
Speaker:would have our day where others wanted to celebrate us. Because I really
Speaker:just wanted to disappear in the past.
Speaker:And over time, I saw a
Speaker:shaman at a friend's suggestion, and
Speaker:one of the things she said to me was, you must collaborate. And that has
Speaker:also been one of those guiding words. Lights
Speaker:biggest part of my work that led to, like, first ever podcast
Speaker:with a dear friend and amazing human,
Speaker:Elena Brower, who happens to be my sister's college
Speaker:roommate. She was the only one I knew that had a podcast. She had all
Speaker:these famous authors on. I was like driving down Lakeshore
Speaker:Drive, if I could collaborate with anyone, who would it be? And her name
Speaker:came into my mind and I wrote her.
Speaker:And it like, was a boomerang how fast it returned. And
Speaker:I got an intake form from her assistant
Speaker:and it said, is there anything else you want us to promote? And it was
Speaker:a lengthy intake form. Out of my fingers,
Speaker:like magic, came the memory circle. I like, shouted out to my girls,
Speaker:look up Instagram and see if the memory circle is available. Look. I go,
Speaker:daddy, see if the memory. Before I hit send on the form. I just wanted
Speaker:to make sure that it was kind of free and clear.
Speaker:And I booked an event to
Speaker:promote Camp Erin. It was a free grief circle at a new
Speaker:photo at a new studio that a friend had opened called the Space
Speaker:Between. My friend Darren, and she
Speaker:realized in my doing so that her mother had experienced mother loss at a
Speaker:young age. Invited her mother, sort of saw it through my
Speaker:eyes, appreciating her mother's experience that she had
Speaker:never really noted, you know.
Speaker:And Darren gets a call after she puts it on
Speaker:the calendar, and it's from a woman who's a practitioner there.
Speaker:And she says, hey, this woman Cindy, who
Speaker:does the OK here called and said she wants to know if you want to
Speaker:collaborate. I was like, wait, what?
Speaker:So it turns out Cindy is a medium fast
Speaker:forward. She. She lives in my town in New York now. We both met
Speaker:in Chicago back when. So I said I
Speaker:would love to, but I need to make sure this person does not, you know,
Speaker:a kook. So I paid and booked an appointment with
Speaker:her. And I walked in and she said, your mom's been here all morning.
Speaker:And at the very end of our reading, she sort of dismisses, like all
Speaker:the energies and angels and spirits and guides and,
Speaker:you know, she's sort of closing out the our appointment. And she says,
Speaker:wait, wait, wait. Ellen has one more thing to say. Don't make
Speaker:it sad. So mom was completely on board.
Speaker:And I think my worry always
Speaker:Was it would define me as the sad girl. And my business would be like
Speaker:the business of being sad. And I knew otherwise from even the
Speaker:very few circles that I had done
Speaker:that. It was more like being a hope dealer. It really
Speaker:was much, much less about sadness and just giving
Speaker:people a place to put it down, process,
Speaker:be with it, swim in the soup, sit
Speaker:with others who get it. And I just knew it was anything
Speaker:otherwise, and I knew it was a need because people would say, there's nowhere
Speaker:to go for this. You're such a pioneer.
Speaker:And I love it. And I love. I love this story. I love that
Speaker:you're a hope dealer and that Ellen said, don't make it sad
Speaker:because there's enough of that. Yeah. And I
Speaker:think sometimes it is sad, but it's. But it's.
Speaker:It's a sad that is so universal
Speaker:in so many ways. Right there is this. I feel
Speaker:like I was born a little bit bittersweet, if you will. But it's like, to
Speaker:me, it's like a sad song or
Speaker:crescendo in music that like, brings tears to your
Speaker:eyes. I think I'm just so attuned to
Speaker:those big feelings. Like, I'm. It's. I'm so easy to. To
Speaker:tears. And I was often called, like, oh, you're so sensitive. You
Speaker:worry about worrying, but I feel like it's empathic. And in that
Speaker:same reading, my mom told the
Speaker:shaman that she was sorry she never fostered my gift. So I think
Speaker:my mom knew that I had this intuition that I had this,
Speaker:this guiding in intuitive guidance that
Speaker:I knew I knew. And, and I. And I used it in
Speaker:work because I feel like I
Speaker:could smell trends a mile away. Like, I used to know what was
Speaker:coming next, and I used to get really excited, kind of like,
Speaker:what's next? What's new? There was like this woman called
Speaker:Faith Popcorn that you all have to look up because she was a futurist.
Speaker:And there was so much about that that intrigued
Speaker:me. But I also had a lot of proof in the world,
Speaker:working in fashion and beauty and branding, that my
Speaker:instincts were. Were spot on. And it was outside of creativity. It
Speaker:was like sort of this, this knowing, this hunch.
Speaker:I love that. And
Speaker:so you're featured in our book
Speaker:and one of your tattoos is featured. Tell us about it.
Speaker:So on the morning of my 50th
Speaker:birthday, I didn't have much of a plan. My mom died at
Speaker:50. I think the year between 49 and 50. The story that was
Speaker:on loop in my head was, what if this is all you had
Speaker:left? What if this is all you had left? What if this is all you
Speaker:had left? And I can't remember anything like Giant I
Speaker:did that year, but when I woke up on that morning,
Speaker:I turned to my husband in bed and said, can you call
Speaker:Harlan? My husband has a sleeve of tattoos. Can you call
Speaker:Harlan and see if he'll see me today? I want to get
Speaker:my mom's signature on my wrist,
Speaker:and I wanted it on my left. I'm a lefty. Both parents were
Speaker:righty. Both my sister and I are lefty. And I wanted it on
Speaker:my left hand because of that, but also because it was close to my heart.
Speaker:And Alex didn't say anything about why
Speaker:I was going to. And Harlan said yes, and whatever time
Speaker:it was. And I went that afternoon and brought him a
Speaker:little sketch. He had a. He had to open up some of her loops so
Speaker:that over time it wouldn't close in on itself. But I
Speaker:guess by law, you have to have an id, even though he knew me.
Speaker:And so I handed him my license and he said, today's your
Speaker:birthday. And I said, yes. And then I told him the why and
Speaker:the whole thing. And he said, oh, that's on me. And I was like, oh,
Speaker:Ellen loved a discount. And it was really just so funny.
Speaker:It was very sweet and. And lovely. And I think my mom would
Speaker:be absolutely horrified that I got a tattoo.
Speaker:But I think we also make those kind of like,
Speaker:middle finger choices in life. Like, you're not here. I'm gonna
Speaker:do this anyway, you know? Yeah, I do. Yeah.
Speaker:As soon as my mom died, my. Sister and I both went on Accutane because
Speaker:our mom would never let us. And I was like, she's not here.
Speaker:Right. I mean, I know. I mean, I moved
Speaker:from New York to Chicago. I think I thought I could outrun
Speaker:my grief and said yes by moving away. But
Speaker:I. Yeah. She never would have
Speaker:let me leave the Tri State area if she were alive.
Speaker:That would not have happened. And I think of all the things that happened
Speaker:because of. Not in spite of, but because of. And.
Speaker:And I. I see all of those. Not. Not
Speaker:because everything happens for a reason, because that makes
Speaker:me shake like nails on the tree.
Speaker:But my friend Kathy says that which is right is
Speaker:unfolding. And that really resonates with
Speaker:me that when I look at how it all unfurled,
Speaker:I believe so much of it to be true. Like, I didn't grow up and
Speaker:be like, I know what I'm gonna be when I'm older. You Know, I always
Speaker:wanted to be a writer, but I never in a million years
Speaker:would have thought that I would be a
Speaker:grief specialist and train with Hope Edelman and train with
Speaker:Claire Biddlewell Smith. People's books who I had read
Speaker:later in life that were life
Speaker:changing, altering, and.
Speaker:Yeah. And that ink has
Speaker:meant so much to me, and it has opened so many conversations
Speaker:everywhere I go. That's. That's
Speaker:also interesting. It's like. It's like a little
Speaker:invitation. Yeah. I love it.
Speaker:I love the tattoo and the meaning behind it. It definitely resonates
Speaker:for similar reasons. I have my mother's signature, and that's something you and I both
Speaker:bonded on. You know, there's something so special about having the writing
Speaker:on us permanently, and it brings that feeling of comfort.
Speaker:And I'm right handed and my mom's signature's on my arm, so it's like anytime
Speaker:I'm creating and doing things, she's with me. And I don't know. I absolutely
Speaker:love that and that, you know, you were able to take your
Speaker:experience and build this career and this path.
Speaker:And I want to fast forward to recently to January.
Speaker:You lost your dad, Neil. Yeah. And this was a
Speaker:different type of loss. Yeah. How do you think
Speaker:losing your mom and the work that you've been doing in the grief space
Speaker:laid a foundation for you knowing what was to come?
Speaker:I had lots of presents.
Speaker:I knew from the day
Speaker:that he had a mild cognitive
Speaker:impairment diagnosis that I
Speaker:was on a ride, that I was
Speaker:going to soak up every last memory
Speaker:we had. And I think I was already. It's
Speaker:ironic that the memory circle was named what
Speaker:it was because after my mom's death, I became sort of
Speaker:a keeper of memories. She was so much more a doer,
Speaker:really. Like her, her days had, like, 26 hours and everybody else's had
Speaker:24. She was always doing. She was like,
Speaker:last at the beach and last at the mall and, like, soaking it all up.
Speaker:And we were always running on E in the car. And she was like
Speaker:my dad.
Speaker:The memory circle, to me then meant
Speaker:holding his. All of the memories so tightly
Speaker:as we were in it and
Speaker:learning about caretaking and decision making on
Speaker:his behalf. And as the eldest daughter, I had
Speaker:some really hard conversations with him
Speaker:that I'm not sure my siblings would have been
Speaker:ready to have. And I think that came from my work also, because
Speaker:I'm like the bossy older sister. But,
Speaker:yeah, what do you want? What's best for you
Speaker:if you can't make decisions on your own? And
Speaker:we have to make them for you. What are your wishes? And we really knew.
Speaker:And I think that creates what I call
Speaker:clean grief. Like, I will always miss him and can't believe
Speaker:there's a world in which Neil David Leiner does no longer live.
Speaker:But I knew that
Speaker:everything he wanted was what we were carrying out.
Speaker:We were also his
Speaker:advocates. We fought for dignity
Speaker:and educated people along the way. I shared
Speaker:our story and at the same
Speaker:time, I really met him exactly where he was
Speaker:all the time. But I had this sort of built in
Speaker:little reminder that we were making
Speaker:memories as we were going along. So I had
Speaker:oodles of pictures I didn't want to forget. Like, the
Speaker:cadence of his walk. I
Speaker:wanted to hear I love you more than the whole wide world. And his voice,
Speaker:which is another tattoo that I have on my side because he signed
Speaker:every letter. I was just gonna ask, what are we doing for Neil? Yeah, he
Speaker:signed every. Got it already. And I got it when he was alive because that's
Speaker:amazing. I wanted to show him and see if he
Speaker:remembered, you know, we remembered for him. We
Speaker:told him stories. We told him stories about himself. Like, I
Speaker:was so present in
Speaker:grieving while he was there and knowing what it was going to
Speaker:be like, or at least guessing what it was going to be like on the
Speaker:other side. And 50 versus
Speaker:86 was hugely different. It felt like a
Speaker:very full life. I was very Sad about the 10 years that I feel
Speaker:like this guy with this brilliant brain,
Speaker:incredible advertising creative, who had worked on the very
Speaker:first breast cancer drugs and so many breakthrough ad campaigns and
Speaker:won awards and was beloved by
Speaker:clients. You know, I was so sad that
Speaker:to see his creativity go, but, like, little lights
Speaker:would shine. Like, his sense of humor was, like, so spot on and
Speaker:so quick. And every now and again, we would just
Speaker:know he was in there. I got to read essays
Speaker:aloud that I wrote and share, you
Speaker:know, the resiliency book and essay I wrote
Speaker:about him. And there was just so much that I was.
Speaker:I had this newfound awareness and even
Speaker:calling on palliative care and calling on hospice and
Speaker:filling out a whiteboard in his hospital room, like,
Speaker:my name is Neil. Call me Neil. I have dementia.
Speaker:I wear hearing aids. Like, we learn how to advocate in such a
Speaker:way that it makes me so proud now
Speaker:to share what we learned. I have two
Speaker:brothers. I hate to call them half brothers. My dad remarried and
Speaker:had twins with my stepmother. And
Speaker:my dad's. He calls his. All his social media was like,
Speaker:Grampcy four. And, you know, like, he. He was very about the
Speaker:four of us. And so I always say, like, the liner four was a
Speaker:force. We were connected,
Speaker:cohesive, all for one and one for all. If one
Speaker:wasn't comfortable, we didn't do it. And we all had our own
Speaker:strengths. You know, my sister said I
Speaker:had the boxing gloves on and, you know, was sort
Speaker:of everywhere we went, like, really fighting, not just for
Speaker:my dad, but sort of the advocacy of all
Speaker:elders and all elders who show up at the hospital who
Speaker:have memory loss. Could we have training? Could we, you know,
Speaker:can we do better? Can we do better? Mm. I
Speaker:think that's absolutely beautiful. And Neil is so proud of you. Oh,
Speaker:thank you. And may Neil's memory be a blessing. And I can't wait for you
Speaker:to show me your tattoo when I see you. Yeah, I love it in November,
Speaker:but for sure, in January. Yeah. Yeah. Oh, you know, and
Speaker:I think it's like, Ellen was giving you these gifts to
Speaker:prepare you and to leave that legacy.
Speaker:And how lucky is Neil to have you as
Speaker:a daughter and the, you know, siblings you have, like,
Speaker:what a gift that is. And we were all there on the
Speaker:day that he died, and we played his favorite music, and we.
Speaker:I encouraged everybody to take photos, you know, holding his hand. Like,
Speaker:his hands. Like, there's something about hands in our family that are
Speaker:just. You never forget what it's like, those
Speaker:hands that hold your hands. And I tell that to everybody.
Speaker:I have a friend that's going to visit someone today who
Speaker:is dying, and I said the same thing. Take pictures of your
Speaker:hands together. Oops. Yeah, it's. It can be
Speaker:so beautiful just. Just to have that and remember. But my mom
Speaker:was before social media. My dad was like, the guy
Speaker:was on social media. So I don't know. I have so many
Speaker:pictures and such a large digital footprint.
Speaker:I'm not, like, a giant fan of having my photo taken, but I
Speaker:think about it for my girls, that is part of memory making. I
Speaker:want them to have that when I'm gone,
Speaker:too. And what a gift that
Speaker:you recognize that. What a
Speaker:gift. Is it a gift? I think so. I mean, I
Speaker:know that when I'm feeling really griefy, I turn to a shoebox of photos,
Speaker:and I only have so much online and, like, Instagram deactivated
Speaker:our mother's Instagram account without any sort of warning. And so, like,
Speaker:that felt like this whole new grief. And so taking photos and
Speaker:putting them somewhere where, you know, maybe you're developing them or putting them in books,
Speaker:like, having, like, the physical memories, you know. We need to Print
Speaker:them. Like, if. If you're listening and you don't have a little framed
Speaker:picture on your, you know, bedside desk. I also love when
Speaker:they're around the house like that, because I'm, like, passing by them every day. You
Speaker:know, they're. They're part of. Part of home. Yeah. And I
Speaker:love now the technology. You can just like, oh, you had this. This experience. Like,
Speaker:it's like a vacation or, you know, and there's multiple pictures. You can just print
Speaker:them in a book and have that on display. Or, you know, I. And
Speaker:I have one in my office. From a vacation that we took with dad.
Speaker:Yeah. For his 80th birthday. It's like, you know, him
Speaker:under this, like, waterfall,
Speaker:like, his. Living his best pina colada life. Like, that's
Speaker:amazing. You know, my mom used to complain because there was never,
Speaker:like, there wasn't a lot of pictures of me, my mom, and my sister in
Speaker:our adult life. And right before the pandemic, we did a trip to Palm Springs,
Speaker:and there's this company called Flytographer, and it's my friend's company, and I love it.
Speaker:But we booked a photographer and we did a photo shoot in the desert. And
Speaker:then, like, a couple weeks later, the world shut down, and then she died. So
Speaker:we have these really beautiful photos, which was a gift that we got for mom.
Speaker:So we got actually this final photo shoot. And it's like, I wish
Speaker:we had more. I wish we started earlier, like,
Speaker:you know, and so if you're listening, like, listen to Barry and me. Like, take
Speaker:as many possible. Like, we know now, because you can't just, like, make new
Speaker:photos. I mean, with AI, you can, but that's not. That's weird. Kind of
Speaker:freaky. Yeah. I wish I. I had also asked,
Speaker:like, all the relatives for the pictures they had
Speaker:of my mom. I get surprise
Speaker:ones every now and again, which is such a treat. Like, her old
Speaker:boss at the real estate firm, her daughter was, like, cleaning out
Speaker:the mom's things and found, like, a picture of my mom that I had never
Speaker:seen. It was like a headshot of some sort that my mom took and another
Speaker:one from some fundraising event. So every now and again, like, I get, like, a
Speaker:little. A little sparkle, a little sprinkle. So if you know that there might
Speaker:be some people that had photos of your loved ones, ask them,
Speaker:too. Sometimes I make appointments to talk to my mom's old friends so I
Speaker:can, you know, connect. I love that. You know, it's so being
Speaker:Jewish. I don't know if this Relates to you. I had a Bat Mitzvah. And,
Speaker:like, for us, it was a trend to, like, have these poster boards, and so
Speaker:you'd have pictures and then everyone would sign it. And my sister,
Speaker:because my mom doesn't exist anymore. Well, she's not. Her house doesn't exist anymore. So
Speaker:my sister has, like, my stuff up in her house, like, because I'm not going
Speaker:to carry some of this stuff across the country because inevitably I'll probably end up
Speaker:back here at some point, but. And I have my own
Speaker:room here. But my sister has my bat Mitzvah board app. And I spent time
Speaker:yesterday looking at all the messages, and I found the one from my mom's mom,
Speaker:who's no longer here. And I found the message from my mom about being so
Speaker:proud of me, which is a common, like, theme, which is what
Speaker:inspired the tattoo book, which you're going to have to read the book to learn
Speaker:about it. My dad's message was love dad. But it's just like
Speaker:nd the messages from. This is:Speaker:not be the photo, but it's like this message that is there. And
Speaker:it's the same thing. Like, if you find old birthday cards, like, I used to
Speaker:never keep birthday cards. If I find a card that was written from
Speaker:someone that is no longer here, I keep it now because I didn't care about
Speaker:having that. But now it's like those pictures and those notes mean more. I have
Speaker:this on. On my desk, and I. I've posted about this, but my friend
Speaker:Lisa realized that when she friend Cindy, she didn't have any
Speaker:notes from Cindy. And so she started this thing called the Orange Envelope
Speaker:Project as a tribute to her friend Cindy. And she sent everyone
Speaker:who had meaning to her in her life and told us
Speaker:why in this little project. So that we have a written card
Speaker:from Lisa to honor Cindy. And it came in this giant
Speaker:orange envelope, and I posted about it with Lisa's permission,
Speaker:because this is a very easy way to
Speaker:honor someone. It's a great thing to do if you're honoring the memory of someone
Speaker:you've lost. But also, I was so
Speaker:touched reading about how
Speaker:I'm perceived by Lisa while we were all. While we were all alive.
Speaker:Thank you very much. Whoa. I love that. Can you send me
Speaker:that social media post? So I just had this idea because I do a lot
Speaker:of traveling for the work that I do because I don't have kids, and I
Speaker:have this freedom, and I do a lot of work in the grief space, helping
Speaker:Grief trips. Co facilitating grief trips. And I'm like,
Speaker:you know what I'm bringing back Sending postcards. And not just to my.
Speaker:I'm going to send them to myself. So in the moment, if I'm having a
Speaker:moment, I want to write a postcard to myself and send it, but I'm going
Speaker:to start sending postcards to the people I love again. And I
Speaker:think also bring mom into the conversation. Like, if you
Speaker:wrote postcards to heaven, like, they don't even have to have an
Speaker:address. Yeah, or. Or I could write them to mom and mail them to me.
Speaker:Yes, that's what I was just gonna say. Yeah, but I mean, postcards also, it's
Speaker:like around the. I don't know. Anyways, I just recently had that idea. Cause I
Speaker:was like, you know, like, I miss getting non bills in the mail.
Speaker:I'm like, I'm just gonna start sending myself mail. Like, I mean, I'll send it
Speaker:to Shane, but it'll be to me, you. Know, I love that. Oh,
Speaker:I love that too. Okay, so we're. We're getting close to time here. And I
Speaker:feel like I can talk to you forever, because I can. And
Speaker:I really, like, I think this is just the tip of the iceberg. And you
Speaker:are, I'd say, one of the pioneers in the grief space. And you're my unofficial,
Speaker:like, mentor. And I look up to you like my big sister in grief.
Speaker:You know, me and B B and me. Double B.
Speaker:What advice do you want to share today to someone
Speaker:who's going through something similar or something that they can relate to in
Speaker:your story? You know, people often ask me
Speaker:for parenting advice, especially motherless mothers.
Speaker:And what I always try to impart is
Speaker:find ways to be proud of yourself. The thing that
Speaker:I lost the most when my mom died. She was my greatest
Speaker:cheerleader. So too was my dad.
Speaker:But there was something about their affirmation because
Speaker:Ellen had a really high bar in the best
Speaker:way. And I missed so much the
Speaker:idea of her being proud of me. So it's kind of twofold.
Speaker:Learning to be proud of yourself and not waiting
Speaker:for opportunities to be remothered.
Speaker:I mean, the nurturance that's lost.
Speaker:Sometimes it feels in the beginning that you
Speaker:have to go it alone because you've lost the person that used to
Speaker:be like the world, world's greatest collaborator and cheerleader of your
Speaker:entire existence. And you have other
Speaker:relationships. And I was married. But there was just
Speaker:something about that
Speaker:mothering feeling. And for a very long
Speaker:time, I didn't allow it. And Sometimes it's because
Speaker:I felt young or
Speaker:immature, like, I had missed out on something. And so I had questions.
Speaker:I needed advice. And I really thought, like, there was something
Speaker:between needing to go it alone and toughing
Speaker:through and riding solo
Speaker:and then really having, like, weird
Speaker:feelings about betrayal to my mother and,
Speaker:I don't know, even awkward female friendships because of
Speaker:it, that I feel like, do not wait
Speaker:to find opportunities to feel that sense
Speaker:of remothering. Notice when you're feeling
Speaker:held and. And feeling that way because you need it. And
Speaker:we all. We all need it. And if you. I love that advice.
Speaker:And, like, yes. Like, I know
Speaker:as someone whose mother is gone, like, I will take all the mothering.
Speaker:I'll take all the mothering. Like, I saw a childhood friend the other day, and
Speaker:her mom gave me the biggest hug, and it just felt so. Like I'm at
Speaker:home. Yeah. And I think that advice is
Speaker:so important. And also being proud, like, that's how this all started, with a
Speaker:tattoo of my leg that says proud of you, which was from my mom. And
Speaker:I think that's so important. And I think if Snoop Dogg. Snoop Dogg makes this
Speaker:speech, I think it's. He's getting the walk of fame star. And he goes, I'd
Speaker:like to thank me. For me, like, I. It's like, be like,
Speaker:snoop Dogg. Be proud of yourself. And, like, acknowledge it out loud and
Speaker:share it. Yeah. I tell my girls, I'm like, I'm so
Speaker:proud of you, but I want you to be proud of you. Yeah.
Speaker:Yeah. Your name is on that work. You know, they'd say to me, do you
Speaker:think it's good? I'm like, do you think it's good?
Speaker:Yeah. Be proud of the way that you show up in the world. And
Speaker:be like. You said, be proud of you. The voice that we listen
Speaker:to the most is our own.
Speaker:Be kind. Be proud.
Speaker:Yeah. I think a lot of the connection
Speaker:that you and I have made to me, the way you reflected
Speaker:back to me feels. Feels like there's, like, lots of maternal undertones, and I
Speaker:think sometimes we can confuse it as a motherless daughter. I lost my mom
Speaker:a long time ago. I don't really know the difference between
Speaker:mentoring and remothering. Well, that's all semantics.
Speaker:It is. It is, but I mean. Yeah. And I. But it's like,
Speaker:it's a friendship. It's a friendship. And I believe that
Speaker:we take care of one another when we need it, and that is
Speaker:mothering. It's a kinship, and it has nothing to do with
Speaker:kids. Yeah. It's like we're all mothers. Yeah.
Speaker:You know, mother nature, like all of it. I think we all
Speaker:need to be nurtured and wherever you can get it.
Speaker:Yeah. Mother nature, motherfucker. All the mothers. Exactly. All the
Speaker:mothers. Ellen was. She'd be so proud of you. She was
Speaker:curse like a sailor and as do I. So. Hey.
Speaker:Yes, yes, Ellen. Another science. Now there's science. I wish
Speaker:she had lived long enough to know that, like scientifically it's like smart
Speaker:and also great for emotional release. Yeah,
Speaker:I love that. Well, Barry, this has been a slice all of the ways to
Speaker:contact and get in touch and follow Barry as in the show notes
Speaker:you can read her story about her Ellen tattoo in
Speaker:resilient AF skin deep stories. So so thank you so much for joining
Speaker:us today. Thank you. Love you. Love you. And thank
Speaker:you to everyone who tuned into this episode. Just remember, you
Speaker:are not alone. And if it's okay to not be okay, but let us be
Speaker:that lighthouse in the storm. We can walk this life together. And
Speaker:friends, just remember you are resilient,
Speaker:afraid.