Jessica Fein’s daughter was diagnosed with an ultra-rare, degenerative disease. This is her story and she is RESILIENT A.F.!

Buy the books: https://theglobalresilienceproject.com/books/

Be featured in RESILIENT A.F.: Skin Deep Stories: https://blairkaplan.kartra.com/page/tattoo

Be featured in RESILIENT A.F.: Stories of Resilience Vol. 3: https://blairkaplan.kartra.com/page/RAF26 

About the Guest:

Jessica Fein is the author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes, and host of the “I Don’t Know How You Do It” podcast, featuring real, raw, and rare conversations with people whose lives seem unimaginable. She writes the “Grace in Grief” column for Psychology Today, and her writing has appeared in The New York Times, Newsweek, The Boston Globe, HuffPost, and other leading publications. Her work encompasses hope and humor, grit and grace — the tools that make up her personal survival kit.

Links:

Facebook:https://www.facebook.com/jessica.fein.92/

Instagram: https://www.instagram.com/feinjessica/

LinkedIn: www.linkedin.com/in/jessica-fein-b643b09

Personal Website: https://www.jessicafeinstories.com

⚠️ Content Note: Some episodes may contain themes that could be distressing. Please take care of yourself while listening, and don’t hesitate to seek support from a mental health professional if needed.

About the Hosts: 

Blair Kaplan Venables is a British Columbia-based grief and resilience expert and coach, motivational speaker and the Founder of The Global Resilience Project. Her expertise has been featured on media platforms like Forbes, TEDx, CBC Radio, Entrepreneur, and Thrive Global. She is named the Top Grief and Resilience Expert of the Year 2024 by IAOTP. USA Today listed Blair as one of the top 10 conscious female leaders to watch and she empowers others to be resilient from stages around the world. 'MyStory,’ which is a television show available on Amazon Prime Video, Apple TV+ and Google Play, showcases Blair's life story. She is the host of the Radical Resilience podcast and specializes in helping people strengthen their resilience muscle using scientifically proven methods and guides grieving high performers with her Navigating Grief Framework. The Global Resilience Project’s award-winning book series are international bestsellers, and her fourth book, RESILIENT A.F.: Stories of Resilience Vol 2, will be published in January 2025. In her free time, you can find Blair writing, in nature, travelling the world and helping people to strengthen their resilience muscles. 

Links:

https://www.blairkaplan.ca/

https://theglobalresilienceproject.com

https://www.linkedin.com/in/blairdkaplan 

https://www.facebook.com/blair.kaplan 

https://www.facebook.com/BlairKaplanCommunications  

https://www.instagram.com/globalresiliencecommunity

https://www.instagram.com/blairfromblairland/

https://www.facebook.com/globalresiliencecommunity  

https://www.linkedin.com/company/the-global-resilience-project 

blair@blairkaplan.ca 


Alana Kaplan is a compassionate mental health professional based in Winnipeg, Manitoba, Canada. She works in the mental health field, and is a co-host of the Resilient A.F.  podcast. Fueled by advocacy, Alana is known for standing up and speaking out for others. Passionate about de-stigmatizing and normalizing mental health, Alana brings her experience to The Global Resilience Project’s team, navigating the role one’s mental health plays in telling their story.

Engaging in self-care and growth keeps her going, and her love for reading, travel, and personal relationships helps foster that. When she’s not working, Alana can often be found on walks, working on a crossword puzzle, or playing with any animal she sees.

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Transcript
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Welcome back to another episode of Resilient AF with

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Blair and Alana. And, yes, we are both here today. Hello. And so

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is Jessica Fine. Did I say that right?

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You did say that right. Yes. Yes. I love when I pronounce names right. She's

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absolutely amazing. I met her through the grief community. She's the

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author of Breathtaking, a memoir of family, dreams, and broken

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genes, and the host of I Don't Know How You Do It podcast,

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featuring raw, real, and rare conversations with people

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whose lives seem unimaginable. In fact, Alana and I were

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both guests on her show. She writes the grace and grief column

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for Psychology Today, and her writing has appeared in The New York Times,

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Newsweek, the Boston Globe, HuffPost, and other leading publications.

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Her work encompasses hope and humor, grit and grace, the

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tools that make up her personnel her personal survival kit. I was

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gonna say and her personality, which is also true. I'll take

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that. And and, you know, your

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story is your story is something,

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of heartbreak and inspiration, and I

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wanna invite you to share your story. Okay.

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Well, first of all, I'm so happy to be here with both of you. Thank

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you for having me. I'm huge fans as you know, and I loved having the

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two of you on my show. So, yeah, my story. So I

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guess, you know, when we think about my story

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as it pertains to grief, it started when

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I was in my late twenties. And that was a

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long time ago, and I have really lived most of my

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adult life profoundly grieving. When I

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was 27 and my sister was 30,

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she died suddenly. I was the youngest

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of three, and my middle sister was my

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best friend. And we had been on the phone a

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couple of hours earlier. I was at work. She was a new mom, and she

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would call me every day. And I'd be like, I'm at work. Hello? But, you

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know, so it was. And, she was

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out playing with her baby, and she went into cardiac arrest and died

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suddenly. And that, you

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know, changed everything for me. Not only did it change

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who I was and how I saw myself, but it really changed how I saw

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the world. And and I thought that would be

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the defining bad thing that happened in my life. Like, I thought that would

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probably be the worst thing that ever happened to me. And

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it was a defining moment in my life for sure, and it

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was absolutely one of the worst things that happened.

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Couple of decades, I lost both of my parents, so

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relatively young. So over

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the next couple of decades, I lost both of my parents,

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so relatively young, and my

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older sister who went in for

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a routine breast exam and found out she had stage four lung

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cancer. So, you know, just kind of huge,

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horrible loss. And yet none of that

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was, like, the, quote, unquote,

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big loss capital, all capitals, exclamation points, etcetera,

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which was the death of my daughter. My daughter, Dahlia, died

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three years ago, one week after her seventeenth birthday.

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And so, you know, I have

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really learned what it is to

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to be a lifelong griever. I learned most of what it means to

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figure out how to deal with the

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most horrific things one can imagine

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and have a life from my daughter from watching her,

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from watching how she had all of her functionality taken away from

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her over her 17, her ability to walk and

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talk and eat and breathe without a ventilator, and, ultimately, her

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ability to move. For two years, she wasn't able to move. And

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she continued to figure out ways

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to find joy and to be part of the world and to give

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off her most amazing sweetness and love and

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and to really not spend her days curled up

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in the fetal position, which she had every would have had every right to do.

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So she was my guide.

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That's a lot of a lot of loss you've experienced.

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And what struck me is the different roles you've

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experienced loss as and, like, the different relationships you've

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had. So you've you've grieved as a sister, as a best

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friend, then the grief of your own of losing your

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only other sister who's a lot who is alive, then

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being a grieving daughter, and then eventually

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becoming a grieving mother. Yeah.

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And, you know, what's one of the things that has been a

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really interesting perspective for me is having bit lost

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my sibling at that formative time and then

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being the mother of two kids who lost their sibling, because I have three

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kids Yeah. Has been kind of interesting. But the other thing that I

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learned through the the grief with Dahlia in particular

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is about other kinds of grief. Right? Because I I had

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no idea that grief was, like, more than we grieve when somebody

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dies, like, you know, traditional Hallmark card grief.

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And learning about I mean, anticipatory grief,

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yeah, for sure. But the whole notion of ambiguous grief, which was not

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something that I had any idea I had no idea what it meant. And I

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lived that for a very long time. Completely.

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And I wanna speak to something because I had just read an article that you

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wrote for Psychology Today about the three

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year anniversary of losing Dahlia. And you

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talk about something, and I'm hoping you can elaborate on more,

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about the different milestones that Dahlia reached

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and and her place in the family and then having

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her younger siblings now be older than

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than her. Yes. Right. Because Dahlia was the middle.

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And so when and and she died, as I've now

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said it a couple times at 17. And my

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younger child who's two years younger than Dahlia, when he

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became 17, and now this week, he's gonna be

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18, You know, that is so discombobulating, and

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that's something that I really experienced because, you know, we all

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define ourselves by our place within our family structure to a certain

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extent, you know, up until a certain point. So I was, you

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know, the youngest of three, and, you you know, that's kind of how

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you how you exist and carry on through the world when

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you're you know, until you go on and create whatever life you create

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us away from your nuclear family or your family of origin. But when

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I became older than my sister,

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it was just so strange because, of course,

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I still think of my sister in certain respects as 30. You

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know? But then I also think about her aging alongside me.

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So, yes, that was very, very strange. The other thing is that even in

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Dahlia's lifetime, as my

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younger son, Theo, as he

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became developed skills skills and was able to do things that

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she wasn't. And, you know, a perfect example in the role reversal they

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experienced is when when Theo was a baby, Dahlia, like, thought he was

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hers. You know? She was just such the little mama la,

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and she would, feed him. And, like, she just

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loved to feed him. You know? And she would help, you know,

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as he was, like, learning to scribble and whatever. She just loved

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mothering him. And as she lost

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her functionality, he, of course, did so much for

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her. So, you know, she lost the ability

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ultimately to eat, but but before she, you know, she had a feeding tube

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from age nine. But before that, when she was you know, she had a lot

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of tremors and when she would be shaking, he would be now steadying her hand.

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He would be helping her right. So all these things that she helped him do,

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and then we watched as he advanced beyond

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where she would ever get and where she had once

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been both. And that was really hard. And I think in many

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respects in those early years, we saw what she was

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losing based on what he was gaining, right, when they were itty bitty, and we

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could see him surpassing. Right. Because there's so many

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developmental milestones that happen when you're young and and having

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them being somewhat close in age. Exactly. It's like

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And Yeah. And, you know, I I know a lot of people

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who have kids with these insidious insidious genetic

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diseases, and and many of them never develop. Right? From birth,

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they just don't have that functionality. And the thing that, like,

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extra twist of cruelty in the Dahlia story is that

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she was able to do those things, to run and jump and, you

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know, eat and write and do all these things and speak and

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play and then lost that. Mhmm. And, you know, we're

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so used as parents to watching our kids gain all these skills. We're not

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used to seeing them lose them. Yeah.

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So it's you had a lot of that anticipatory grief, I'm guessing,

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as she looked started to lose those skills. And

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not only were you probably holding your own grief, you're probably holding

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Dalia's grief too. How did how was that

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as for both of you, for you and for Dahlia?

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You know, Dahlia was very much focused

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on doing what she could do. She wasn't focused on what she couldn't do.

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Mhmm. And, you know, she loved going to school. She went to school her whole

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life. And, you know, we ended up having to switch schools, and we

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sent her to school with a private nurse. And then she was in a school

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that was on a hospital. Grounds. I mean, this was not conventional school, but she

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she wanted to be out there. She wanted to be experiencing things.

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So for her, you know, I think that the griefiest

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thing for her was losing the ability to eat. That was

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huge for her. I think in many

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ways, that was more upsetting for her than ending up in

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a wheelchair or, you know, other things that she lost. She real you

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know, and and it makes sense. We all of us,

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like, food is such a part

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of, of socializing, of culture, of

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it's so much more than just, like, what you're putting in your mouth. And in

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fact, you know, one of the things that I've written quite a bit about is

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how we had to follow again her lead because when

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she first got her, g tube and was no longer able to eat

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orally, we decided that we were gonna, like, shield her from

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all things food related because we thought that would be so mean to, like, everybody

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to be eating in front of her. So for quite some time I mean,

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like, for a couple of years, when it was dinner time, my husband or I

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would be in the other room playing with her while one of us ate with

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the with the other kids. And then when she went to this new school that

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I was mentioning a moment ago that was on the hospital grounds, they had

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cooking class. And and she was not the only kid with a G2, and I

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was like, what is that? That's, like, horrible. That's terrible. How can they do

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that? And the first day that Dalia

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went to school there, she came home with these cookies they had

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baked. And she had, like, carefully wrapped four cookies, one

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for each of us in this, you know, thing, and she handed each one to

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us, and she was so proud. And we realized she

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wanted to be part of this. You know? Just because she couldn't eat, we were

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we were, like, excluding her even further, of course, unintentionally.

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So from that point on, she became very much a part of

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the whole food preparation thing. We had got her a chef hat.

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She was little chef. She Mhmm. My husband because I don't cook. You know? And

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she would always we never missed a family meal after

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that up until the night before she died because, you know, we realized

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that being part of the eating

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that you know, everything that's involved with that is so much more important than

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the actual eating morally, eating the food.

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Completely. I I don't know if Lana knows part of your

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story, and I know you recently were on a trip.

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Oh, yes. Is that something that we can talk about it? About

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because Yeah. You had some you you had a really beautiful experience,

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and you you did some very beautiful traditions. Yeah. I

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would love to hear about if you can share about all of that.

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Yeah. All three of our kids were born in Guatemala. My husband and

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I adopted all three of them. And,

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so we had not been back. I mean, my husband and I have been to

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Guatemala Five times for all those adoptions, but we had not been

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back with our kids until this past Christmas. And we had

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been waiting for them to tell us when they wanted to go, and so they

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came to us and they said they were ready. And I knew that I wanted

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to do something while we were there to honor Dahlia. I wasn't quite sure at

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first what it would be, but I was working with some

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folks in Guatemala City, and we were talking through some different

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ideas. And they introduced me, to

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a Mayan priestess in, a

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part of Guatemala that was close to where Dahlia was born. And what's

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interesting is that there are a lot of different Mayan dialects.

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So even within Guatemala, people who speak, quote, unquote,

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Mayan, which isn't really actually what the languages are called, might not be able to

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understand each other. But we arranged to

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meet this priestess, Juana, and to have

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a traditional Mayan fire ceremony, which what it

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which is what is done, a, to

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honor people who have died, typically ancestors. Right? But,

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also, this ceremony could be used for many other things. It could be used if

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you wanted help with your business. It could be used, you know, for celebration,

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for many different things. In this case, it was gonna be a memorial ceremony.

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And so we met the Mayan priestess in

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this plaza, which is called Baktun,

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which is actually interesting because it's what it means is

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where where the earth ends. Right? So it's kind of like this

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idea of a liminal space in a way.

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And it was a very traditional ceremony where she came,

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and we had a translator, which is a whole other story because that kind

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of that was, his English our translator's English

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wasn't great. So I had to do some workarounds there. But in

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any event, she came and she set up

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this very traditional altar. And what they do is they set up things that

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would appeal to the person they're reaching, in this case, Dahlia.

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Right? And so there's some things that are always there, like, there's

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different kinds of incense and, different color candles depending

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on what kind of ceremony it is. And there was beautiful

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flower petals and a circle of sugar candy sweetness

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because the idea is that when you burn it, this is what's going up and

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reaching the spirits, and they want it to be, you know, pleasing to the spirits.

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And then based on the direction of the fire and the way the ashes

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burn, she, Juana, the priestess, is getting messages

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from the spirits, from Dahlia. And and she's chanting it was

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forty five minutes. She's chanting in this dialect that, of

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course, we didn't understand. And then the translator is understanding

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them, but he is then translating them to Spanish, which we're then having him

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put Spanish into the, into the phone so

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we could do the translation. I mean, the whole thing was, like, crazy. But in

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any event, it what was fascinating about it was

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it felt so authentic to all of

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us. And it was so weird to me because, you know, we're

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Jewish, and we had had a very traditional Jewish funeral as I've had for every

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member of my family. And I know those songs, and I

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know the tradition. I mean, I know it far too well, honestly.

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And yet this, where we did not understand one thing that the woman was

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saying. We were in a place we had never been before. Everything

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was just so foreign, and everything was so right.

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It felt so much more authentic to

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us. And I think part of that is because we knew that this was, you

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know, the language Dahlia probably heard first. We were there in

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Dahlia's homeland. You know? It just there was just such a feeling

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of this this needed to happen.

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Wow. That's pretty powerful. Yeah. And

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and you you brought up that point of just, like, the different cultural

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ways people grieve in their traditions. And so to

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go from something which is not so foreign to you,

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like the Jewish way of of mourning and which

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I personally find is like a beaut I think Jews Oh, yeah. Well, no. I

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I my nickname is Shiva girl. I'm the biggest Shiva fan

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in the world, so I could talk about Shiva all day long. Wait. Wait. That's

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like a superhero character in a I am Shiva Girl. Oh, and by the

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way, I will tell you. The first time we actually did come up with the,

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where Shiva Man preceded Shiva Girl, when I was sitting my first

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loss, three months before my sister, Nomi, that I was talking about

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earlier, was my stepfather. He died three months before she did.

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And we were doing a traditional Shiva. And so for listeners who might not know,

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if you're doing, your prayer twice a day, you need to have

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what's called dominion. Right? So you need to have 10 people who, depending on

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how religious you are, they may need to be 10 men. In our case, that

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wasn't, true. We women were considered part of the minyan,

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but you have to be Jewish and you have to be of a certain need,

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you know, an adult. And so anyhow, one day, we didn't have

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a minyan, and we weren't gonna be able to do the shiva. And the rabbi

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pulls out his beeper. This was a long time ago, pre cell phone, and, like,

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you know, dial somebody. And the guy shows up, and I'm like, who are you?

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What are you? And this guy is on, like, essentially speed

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dial to show up and complete a minyan if they don't have them. And and

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we said, okay. That's a superhero. Right? That's like Shiva

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guy. Thinking of, like, the impossible theme

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song, like, do do do do, and it's like,

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Shiva. Oh gosh. Amazing. Yeah. Yeah. That's

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fantastic. I to be honest, I forgot what my question was because we went on

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a Sorry. A whole cycle. Cycle. I was saying it was yeah. I

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I do love Shiva. I mean, in in fact, as I've I've had a few

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friends recently who have lost people close to them who aren't Jewish,

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and it's always so weird to me that, like, the next day, they're kind

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of alone or, like, back to usual. And I'm like, wait. Where's the

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week? You need the week. Yeah. Who's feeding you? Yes. Who's bringing

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you food? We have this is just like a quick aside. My best

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friend, her, her mom is known

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for making, like,

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for shivas, making this banana chocolate chip bread. They

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call it and so we call it shiva loaf. Oh my god. That's

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so funny. Funny because, like, we Alana and I had so much death in such

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a short period of time. And so as soon as someone died, I'm like, Alana,

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like You've messed up your Get get get You need the shiva loaf. Tell your

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friend to make the shiva loaf. Like, let's order some shiva loaf. That's

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so funny. I I mean, there was, like, there were years where I was like,

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I if I see another shiva like, I cannot because, like, it's not a shiva

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until the shiva loaf shows up. But it sounds like shiva loaf may be better

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than even shiva. The shiva loaf is fantastic. I also got it rebranded

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as a housewarming shiva or a housewarming loaf once, which was

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fantastic. Loaf. Loaf. Anyway but it's it's

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different than the way, I guess, like, in my end

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Guatemalan traditions, the way they grieve and and honor. And

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and I find that it's something so beautiful

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with loss and grief is just seeing how folks are

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honored, whether it be through a traditional ceremony, whether it be

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through a Shiva, whether it be through a good written

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obituary. Just Yes. I totally agree. And in fact, one of the

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things I'm working on now is a project that's exploring throughout different cultures and

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different religions, different belief systems, you know,

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how how we connect to the people we've lost. Yeah.

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And it was so Dahlia, you said you just felt,

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like, so right for Dahlia to have that.

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I'm I'm curious what your other two

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kids thought about it. Well, I mean, my eldest was like as we

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left, said to me, I wanna be buried in Guatemala.

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And I'm like, okay. Let's assume that's not a decision

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I'm gonna be making. Let's assume that's gonna be right? I was like, I don't

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need to to know about that. My time. Yeah. I was like, wait.

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No. But I thought it was interesting that that was kinda, like, the first thing

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that that was I think it was very important to both of them. I think,

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you know, being in Guatemala was much more important to both of them than,

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I shouldn't say more important. I should say I was happy to see how

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they connected from the second they got off the plane with being in Guatemala in

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general and then with this experience in particular.

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Completely because I mean, how old were they when you adopted

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all three of them? My eldest was,

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was a year and a half. Mhmm. And

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my and Dolly was our youngest. She was six months.

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And then our youngest, our little guy, was 10.

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Okay. So all quite young. Newborn. Yeah. All quite young,

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yet still lived some life in Guatemala, and it's

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in their bones and in their In their brain wiring, for sure. Yeah. In

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their genetics and their brain wiring. So that makes sense that they felt

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this, like, almost Yeah. Sense of

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I don't wanna say home because it might be. Maybe it is, but I don't

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wanna put words into their mouth. I think they also loved that

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they were surrounded by people who looked like

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them. Yeah. You know? For example, one of the

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things, in Guatemala, for the

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most part, the people are shorter than they are here,

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and my kids are short. And, my

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husband's quite tall. You know? And I think that they loved there. They were kinda,

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like, taller than a lot of people. You know, that just isn't something they are

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accustomed to, and that felt good to them. And they, you know, they liked being

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in the majority. It was really interesting because, you know, my husband and I were

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in the minority. It was a total inverse. And the other thing is, you know,

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where we were, we traveled quite a bit. It was not Americanized. It was amazing

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because so much of the time we travel places and everybody speaks English and the

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this was not that. And it was really great. Wow. I

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think that's so beautiful. And I I mean, even, you

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know, for your other kids to experience that.

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And what a gift for you to bring them there. Do you We can't

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wait to go back. Yeah. Just saying, do you have plans to go back? Oh,

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totally. I mean, the only thing is I will say in the,

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spirit of being fully honest, I ended up, like, the last couple days

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getting pretty sick there. So just like the you know? So I'm a little nervous.

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But once I get over that, yes, we're gonna go back. And in fact, I

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kind of fell in love with Antigua, which was, at one point,

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the capital of Guatemala now or it's Guatemala City, but it's just the

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most beautiful, beautiful city. And, we found a school where

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like, an intensive Spanish speaking school or Spanish language

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learning school. And, so at least my husband and I are really interested in doing

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that. And then, of course, you know, we've been talking about, oh my god. What

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if we have to leave this country just because, you know, we're a little crazy

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right now. We won't go into that. But we're like, how funny would it be

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if we end up moving to Guatemala? I mean, I think more, like, not even

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funny, but, like, how beautiful. Yeah. Yeah. Beautiful

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and and something we would not have seen coming, but you you never know.

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Well, there's a lot of things happening that no one has seen coming. So

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Yeah. It's scary. I'm really scared. I'm really scared for my kids.

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Yeah. What like, do you mind if we talk about that briefly? Because I

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think it's really relevant. So for those

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of you listening, Alana and I are Canadian in in Canada.

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So our experience with what's happening around the world is

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only what we see on the news.

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What's it like for you having two

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visibly nonwhite children I assume you're doing it.

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We also have gender stuff in my family too, which is right now, you know,

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I mean, we're just watching DEIP erased and erased and erased,

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and it's so scary. I I

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I, you know, I try to tell myself that,

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you know, don't get carried away. Don't let the thoughts, you know, make you

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crazy. But then you read about people who are just, like, swept off the streets,

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you know, because they, you know, are just I'm like, you guys have to go.

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You have to always have your, you know, US documents with you, your citizenship

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papers with you. Like, it's Do they have they carry that stuff with them? I

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want them to. I mean, I don't think most people I mean, as the, like

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But are they doing it? You know,

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they have pictures of their passports on their phone. Right? But, you know,

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it's scary. It is very scary. I I worry a lot,

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and I think it's gonna get a lot worse. I mean, we're like we've got

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it all. We've got, like you know, there's a lot of antisemitism

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now. Mhmm. For sure, you, you know, there's

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so much look. If you're not, like, a white

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heterosexual Yeah. Cis

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male. Yeah. Which of the four of us, one of us fits that bill.

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Right? So so my husband will be fine. Although he's Jewish. So He's

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Jewish, so not really. Yeah. Yeah. Yeah. Top of the

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food chain. Top of the food chain. Right? Like Yeah. You know, it's

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I can't even imagine how you feel navigating

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that. And, I mean, I

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know a lot of people who feel the same way. Like, they're scared and they

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don't feel safe, and I can't imagine what it what it feels like to not

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feel safe for for you or your family in your home, like, in

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your hometown. Right? You know? And and I also I just feel so sad for

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my kids that this that they are seeing this, that these are the

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leaders. You know? And and when you read

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about the way they speak about people who are

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different, it's like every every day there's something new. I mean,

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now getting rid of so many rights for people with

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disabilities. I mean, that you know, I think about what oh my god.

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Like, for example, Medicaid.

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Right? When you have a child who is severely

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disabled, nobody could afford I mean, we had in home

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nursing care around the clock for eight years. You know? I mean, you're all

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on Medicaid. Doesn't matter what you know, everybody's on Medicaid if in

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that situation. And when now with the, you know, Department of

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Education being dismantled, I mean, I don't I know this isn't a political show. No.

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No. It's but it's a it's it's resilience. That's what we talk about. Yeah. So,

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you know, Department of Education being dismantled means that

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disability rights for children in schools. And, again, you know, so

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now I have an one of my kids is has more

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typical, like, IEP and disability rights in that respect. But then I I

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think about, you know, what would be happening to

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Dahlia. Yeah. It's so scary. Anyway

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That is very scary. Yes. We do have a little cottage in Canada, so who

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knows? Maybe we'll come in Come on over. Papers with you guys.

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I I mean, I think this conversation, like, it can go

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on because there's so many different, like, things happening.

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And, you know, we are brought here to today to talk

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about your journey, you know, with grief. And,

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you know, what's happening is a type of grief. It is a type of grief.

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And, again, you know, what we were saying at the beginning in terms of, like,

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I thought grief was what happened when somebody died. And now realizing, my god,

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we are all grieving. There is a lot to be

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grieving. And and even even the more Hallmark

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Hallmark card traditional grief, especially now, you know, at

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this age, everybody's a griever. Right?

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And if they're not, they will be. Right? I mean, it's the

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most universal thing, as you guys know. And it's just we all Great equalizer.

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Yeah. It's just like the pandemic, an equalizer. Like, no one is immune.

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Nobody's immune. And what is strange is that

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given that it is the great equalizer and it's I call it

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an equal opportunity emotion, it's so strange that we're

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just so weird and awkward and uncomfortable and don't know what to say or do

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and don't wanna talk about it. You know, it's like that we should all be

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fluent. Well, because of the work you do and the

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work we do and that our fellow other, you know, grief experts are

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doing, the conversation is starting to become more normal.

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And we're still gonna be awkward, but maybe we'll have more tools because grief

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is awkward. Grief is awkward. Right. But and and even

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just knowing that we can say, this is really weird. Like, I feel really uncomfortable.

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And that's like, I am really fucking sad and, like, admitting it and,

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like, not functioning. And it's it's it's really interesting to even

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see the conversation change from, like, for us, like, from six years ago

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when my life kinda started to fall apart to now and seeing how

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more comfortable people are, but we still have a long way to go. And I

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wanna thank you for the work that you do and the writing that you do

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because it's helping pave that way.

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Well, thank you for what you guys are doing too. And I wonder if you

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think that it really is that the conversation is changing and people are getting more

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comfortable or if it's that you know people who are

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in the grief space. So in your world, it it's

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more. I think it's p I like, on social media, for example, and I'm a

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vintage millennial. So, like, I'm of the generation that's starting to be more comfortable

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talking about the things that aren't just sunshine or rainbows. But

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I'm seeing more people that aren't grief professionals

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showing up and sharing their feelings publicly about what they're

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going through. Mhmm. So I think it has a lot

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to do with also people like us who are comfortable sharing.

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Yeah. It's like this unwritten, but actually written because it's Facebook statuses or

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whatever. Like, permission to show up and share all the

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things that are happening, the good and the bad. And so I'm seeing a lot

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of people in my my, like, cohort of age and

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and younger really sharing everything and

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using social media as an outlet to express their

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feelings. And I think it's really beautiful. Yeah. I do

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very normalizing. So normalizing. And I've met such

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amazing humans this way through social by people who are

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taught, you know, being real. Yeah. And I mean, even if those people who aren't

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comfortable making a huge Instagram post when people like us

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or other people show up and share their feelings, it may be that bridge

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to give them permission to feel comfortable to get a therapist or

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to acknowledge what they're going through. And that's, like, our whole

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purpose. And so, yeah, I do think the conversation

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conversation is changing. And,

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yeah, and this conversation will hopefully help move the needle even more.

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And, Jessica, before we wrap up, why don't you share

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a piece of advice maybe for mothers who are at the

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beginning of a journey similar to yours was with,

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Dahlia? Yeah. It's hard to just come up with

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one, but I would say that this is going

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to define so much of your life. Like, yes. That's

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true. It's gonna define a lot, but it does not define you, and

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it does not define your child. And I think continuing to

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find those things outside outside of the disease. And if if it's

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a chronic illness, that can be hard. Right? But to find

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those things that have nothing to do with it, that bring you joy, that

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create meaning, that, you know, give you beauty, it are

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so important. And those will become perhaps smaller and more

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ordinary things, but they'll become things that

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really feel extraordinary. And so I would say

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also for the parent to have something that

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is just hers or his, something that, you know, maybe

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you did before or that you want to to kind of take

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on, whatever it is so that your whole world doesn't

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become this one thing. That's beautiful advice.

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Thank you. And thank you for joining us on today's

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episode. Having me. Yeah. And thank you to everyone who took the time

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to listen to Jessica's

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story, to, you know, follow along all of our shows

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or maybe you're new here. Hi. Welcome. Just know

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that it's okay to not be okay. You you're gonna get through those

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dark days. I promise. We're gonna hold your hand.

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Let the Global Resilience Project and this podcast be that lighthouse in

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the storm. And just remember, friends, you are

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resilient AF. Thank you.

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